Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

Please provide a reason for the requested submission exemption and the
time-frame during which the exemption will be active.
Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Longitudinal Studies of Autism Spectrum Disorders: From 2 to 23
Cathy Lord, Ph. D 
Longitudinal Studies of Autism Spectrum Disorders (ASD): From 2 to 23 - Increasing Understanding of Nonverbal School-Aged Children and Children with Limited Language Skills
NDAR
Closed
Shared
$2,692,305.00
63
219
175
Loading Chart...
NIH - Extramural None


R01MH081873-01 Longitudinal Studies of Autism Spectrum Disorders: 2 to 23 09/01/2008 05/31/2013 219 175 WEILL MEDICAL COLL OF CORNELL UNIV $2,692,305.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 56
Adapted ADOS Module 1 Clinical Assessments 45
Adapted ADOS Module 2 Clinical Assessments 6
Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 59
Autism Diagnostic Observation Schedule (ADOS) - Module 1 (2007) Clinical Assessments 1
Autism Diagnostic Observation Schedule (ADOS) - Module 2 (2007) Clinical Assessments 2
Autism Diagnostic Observation Schedule (ADOS)- Module 3 (2007) Clinical Assessments 3
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 5
Child Behavior Checklist (CBCL) 6-18 Clinical Assessments 57
DAS-II:Differential Ability Scales 2nd Ed. Early Years Clinical Assessments 45
Mullen Scales of Early Learning Clinical Assessments 42
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 1
Pubertal Development Scale Clinical Assessments 15
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 55
Services Log Clinical Assessments 50
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 57
TEACCH Transition Assessment Profile Clinical Assessments 21
Vineland-II - Survey Form (2005) Clinical Assessments 61
Wide Range Achievement Test 4 (WRAT4) Clinical Assessments 36

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27871640Create StudyMultidimensional Influences on Autism Symptom Measures: Implications for Use in Etiological Research.Journal of the American Academy of Child and Adolescent PsychiatryHavdahl KA, Hus Bal V, Huerta M, Pickles A, Øyen AS, Stoltenberg C, Lord C, Bishop SLDecember 2016Not Determined
27282463Create StudyThe autism symptom interview, school-age: A brief telephone interview to identify autism spectrum disorders in 5-to-12-year-old children.Autism research : official journal of the International Society for Autism ResearchBishop SL, Huerta M, Gotham K, Alexandra Havdahl K, Pickles A, Duncan A, Hus Bal V, Croen L, Lord CJune 2016Not Determined
27090613Create StudyUse of machine learning to improve autism screening and diagnostic instruments: effectiveness, efficiency, and multi-instrument fusion.Journal of child psychology and psychiatry, and allied disciplinesBone D, Bishop SL, Black MP, Goodwin MS, Lord C, Narayanan SSApril 19, 2016Not Determined
26908679Create StudyAutism Spectrum Disorder, Intellectual Disability, and Delayed Walking.PediatricsBishop SL, Thurm A, Farmer C, Lord CMarch 2016Not Determined
26748412Create StudySubdimensions of social-communication impairment in autism spectrum disorder.Journal of child psychology and psychiatry, and allied disciplinesBishop SL, Havdahl KA, Huerta M, Lord CJanuary 8, 2016Not Determined
26385796Create StudyReplication and Comparison of the Newly Proposed ADOS-2, Module 4 Algorithm in ASD Without ID: A Multi-site Study.Journal of autism and developmental disordersPugliese CE, Kenworthy L, Bal VH, Wallace GL, Yerys BE, Maddox BB, White SW, Popal H, Armour AC, Miller J, Herrington JD, Schultz RT, Martin A, Anthony LGDecember 2015Not Determined
26140652Create StudyUtility of the Child Behavior Checklist as a Screener for Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism ResearchHavdahl KA, Von Tetzchner S, Huerta M, Lord C, Bishop SLJanuary 2016Not Determined
25959391Create StudyDevelopmental trajectories as autism phenotypes.American journal of medical genetics. Part C, Seminars in medical geneticsLord, Catherine; Bishop, Somer; Anderson, DeborahJune 2015Not Determined
25922445Create StudyDaily living skills in individuals with autism spectrum disorder from 2 to 21 years of age.Autism : the international journal of research and practiceBal VH, Kim SH, Cheong D, Lord COctober 2015Not Determined
25901773Create StudyDepressive and anxiety symptom trajectories from school age through young adulthood in samples with autism spectrum disorder and developmental delay.Journal of the American Academy of Child and Adolescent PsychiatryGotham, Katherine; Brunwasser, Steven M; Lord, CatherineMay 2015Not Determined
25832801Create StudyThe Autism Diagnostic Observation Schedule, Toddler Module: Standardized Severity Scores.Journal of autism and developmental disordersEsler AN, Bal VH, Guthrie W, Wetherby A, Ellis Weismer S, Lord CSeptember 2015Not Determined
25774214Create StudyThe relationship of motor skills and adaptive behavior skills in young children with autism spectrum disorders.Research in autism spectrum disordersMacdonald M, Lord C, Ulrich DNovember 2013Not Determined
25712123Create StudyReplication of Standardized ADOS Domain Scores in the Simons Simplex Collection.Autism research : official journal of the International Society for Autism ResearchHus Bal V, Lord COctober 2015Not Determined
25243378Create StudyHow interview questions are placed in time influences caregiver description of social communication symptoms on the ADI-R.Journal of child psychology and psychiatry, and allied disciplinesJones, Rebecca M; Risi, Susan; Wexler, Diana; Anderson, Deborah; Corsello, Christina; Pickles, Andrew; Lord, CatherineMay 2015Not Relevant
25239176Create StudyMeasurement of nonverbal IQ in autism spectrum disorder: scores in young adulthood compared to early childhood.Journal of autism and developmental disordersBishop SL, Farmer C, Thurm AApril 2015Not Determined
24916450Create StudyDepression and its measurement in verbal adolescents and adults with autism spectrum disorder.Autism : the international journal of research and practiceGotham, Katherine; Unruh, Kathryn; Lord, CatherineMay 2015Not Relevant
24802136Create StudyRumination and perceived impairment associated with depressive symptoms in a verbal adolescent-adult ASD sample.Autism research : official journal of the International Society for Autism ResearchGotham K, Bishop SL, Brunwasser S, Lord CJune 2014Not Determined
24762385Create StudyMotor skills and calibrated autism severity in young children with autism spectrum disorder.Adapted physical activity quarterly : APAQMacDonald M, Lord C, Ulrich DAApril 2014Not Determined
24590409Create StudyThe autism diagnostic observation schedule, module 4: revised algorithm and standardized severity scores.Journal of autism and developmental disordersHus V, Lord CAugust 2014Not Determined
24313878Create StudyPredicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesAnderson DK, Liang JW, Lord CMay 2014Not Determined
23258569Create StudyExploring the relationship between anxiety and insistence on sameness in autism spectrum disorders.Autism research : official journal of the International Society for Autism ResearchGotham K, Bishop SL, Hus V, Huerta M, Lund S, Buja A, Krieger A, Lord CFebruary 2013Not Determined
23223363Create StudyAttachment in young children with autism spectrum disorders: an examination of separation and reunion behaviors with both mothers and fathers.Autism : the international journal of research and practiceGrzadzinski RL, Luyster R, Spencer AG, Lord CFebruary 2014Not Determined
23153932Create StudyDiagnosing autism in neurobiological research studies.Behavioural brain researchJones RM, Lord CAugust 15, 2013Not Determined
23143131Create StudyStandardizing ADOS domain scores: separating severity of social affect and restricted and repetitive behaviors.Journal of autism and developmental disordersHus V, Gotham K, Lord COctober 2014Not Determined
23065116Create StudySubcategories of restricted and repetitive behaviors in children with autism spectrum disorders.Journal of autism and developmental disordersBishop SL, Hus V, Duncan A, Huerta M, Gotham K, Pickles A, Kreiger A, Buja A, Lund S, Lord CJune 2013Not Determined
23032385Create StudyApplication of DSM-5 criteria for autism spectrum disorder to three samples of children with DSM-IV diagnoses of pervasive developmental disorders.The American journal of psychiatryHuerta M, Bishop SL, Duncan A, Hus V, Lord COctober 2012Not Determined
22823182Create StudyFactors influencing scores on the social responsiveness scale.Journal of child psychology and psychiatry, and allied disciplinesHus V, Bishop S, Gotham K, Huerta M, Lord CFebruary 2013Not Determined
22729382Create StudyEffects of child characteristics on the Autism Diagnostic Interview-Revised: implications for use of scores as a measure of ASD severity.Journal of autism and developmental disordersHus V, Lord CFebruary 2013Not Determined
22486486Create StudyAnnual research review: re-thinking the classification of autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesLord C, Jones RMMay 2012Not Determined
22065253Create StudyA multisite study of the clinical diagnosis of different autism spectrum disorders.Archives of general psychiatryLord C, Petkova E, Hus V, Gan W, Lu F, Martin DM, Ousley O, Guy L, Bernier R, Gerdts J, Algermissen M, Whitaker A, Sutcliffe JS, Warren Z, Klin A, Saulnier C, Hanson E, Hundley R, Piggot J, Fombonne E, Steiman M, Miles J, Kanne SM, Goin-Kochel RP, Peters SU, et al.March 2012Not Determined
21905806Create StudyChanges in maladaptive behaviors from midchildhood to young adulthood in autism spectrum disorder.American journal on intellectual and developmental disabilitiesAnderson DK, Maye MP, Lord CSeptember 2011Not Determined
21905802Create StudyConvergent validity of the Mullen Scales of Early Learning and the differential ability scales in children with autism spectrum disorders.American journal on intellectual and developmental disabilitiesBishop SL, Guthrie W, Coffing M, Lord CSeptember 2011Not Determined
21610184Create StudyMotor skills of toddlers with autism spectrum disorders.Autism : the international journal of research and practiceLloyd M, MacDonald M, Lord CMarch 2013Not Determined
21410473Create StudyTelescoping of caregiver report on the Autism Diagnostic Interview--Revised.Journal of child psychology and psychiatry, and allied disciplinesHus V, Taylor A, Lord CJuly 2011Not Determined
21078305Create StudyIs schizophrenia on the autism spectrum?Brain researchKing BH, Lord CMarch 22, 2011Not Determined
21058793Create StudyAutism: from research to practice.The American psychologistLord CENovember 2010Not Determined
20589716Create StudyRestricted and repetitive behaviors in toddlers and preschoolers with autism spectrum disorders based on the Autism Diagnostic Observation Schedule (ADOS).Autism research : official journal of the International Society for Autism ResearchKim SH, Lord CAugust 2010Not Determined
20559336Create StudyBehavioural phenotyping assays for mouse models of autism.Nature reviews. NeuroscienceSilverman JL, Yang M, Lord C, Crawley JNJuly 2010Not Determined
20195735Create StudyEarly language patterns of toddlers on the autism spectrum compared to toddlers with developmental delay.Journal of autism and developmental disordersEllis Weismer S, Lord C, Esler AOctober 2010Not Determined
19127655Create StudyEvidence for latent classes of IQ in young children with autism spectrum disorder.American journal of mental retardation : AJMRMunson J, Dawson G, Sterling L, Beauchaine T, Zhou A, Elizabeth K, Lord C, Rogers S, Sigman M, Estes A, Abbott RNovember 2008Not Determined
18434924Create StudyA replication of the Autism Diagnostic Observation Schedule (ADOS) revised algorithms.Journal of the American Academy of Child and Adolescent PsychiatryGotham K, Risi S, Dawson G, Tager-Flusberg H, Joseph R, Carter A, Hepburn S, McMahon W, Rodier P, Hyman SL, Sigman M, Rogers S, Landa R, Spence MA, Osann K, Flodman P, Volkmar F, Hollander E, Buxbaum J, Pickles A, Lord CJune 2008Not Determined
18058216Create StudyReliability of the ADI-R: multiple examiners evaluate a single case.Journal of autism and developmental disordersCicchetti DV, Lord C, Koenig K, Klin A, Volkmar FRApril 2008Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
ABC Community info iconApproved
Research Subject and Pedigree info iconApproved
ADOS info iconApproved
DAS-II: Differential Ability Scales info iconApproved
Wide Range Achievement Test info iconApproved
Pubertal Development Scale (PDS) info iconApproved
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Vineland (Parent and Caregiver) info iconApproved
TEACCH Transition Assessment Profile, 2nd Ed. (TTAP) info iconApproved
Education, Treatment and Services Log info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Mullen Scales of Early Learning info iconApproved
ADI-R info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Return
Edit