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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
New Trial
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Preschool Reading and Language Interventions for Children with Autism
Roxanne Hudson 
The goal of this proposed project is to determine the immediate (end of preschool) and longer term (end of kindergarten) effects of preschool interventions based on areas that have been previously shown to be important for emergent literacy and improved reading and language outcomes. To investigate these interventions, we will use three randomized control trials to test the efficacy of (a) Dialogic Reading and Phonological Awareness interventions in comparison to untutored peers and (b) compare the efficacy of the two interventions with each other. We will also examine whether intervention benefits are greater for certain child characteristics to determine under what conditions the treatments are most effective. Because it is important for young children to arrive in kindergarten prepared for conventional literacy instruction, this study will also follow-up children one year post-intervention to determine for which outcomes children with ASD continue to benefit from preschool intervention. Finally, we will examine which preschool pretest characteristics predict kindergarten outcomes for children across experimental conditions in order to determine which early literacy skills are most important indicators of later reading success for children with ASD something that is currently unknown for children with ASD.
NDAR
Enrollment Completed
Shared
$1,160,309.00
92
180
142
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NIH - Extramural None


R01HD072143-01 Preschool Reading and Language Interventions for Children with Autism 07/01/2012 06/30/2016 180 142 UNIVERSITY OF WASHINGTON $1,160,309.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Demographics - Pittsburgh Clinical Assessments 89
Research Subject Clinical Assessments 89

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
No records found.
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Demographics info iconApproved
Research Subject and Pedigree info iconApproved
Gilliam Autism Rating Scale (GARS) info iconApproved
DIBELS Fluency info iconApproved
AIMSweb Test of Early Literacy Curriculum Based Measurement (TEL) info iconApproved
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Woodcock-Johnson Tests of Cognitive Abilities and Achievement info iconApproved
Expressive One-Word Picture Vocabulary Test (2000) info iconApproved
Test of Preschool Early Literacy (TOPEL) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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