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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a way to query and access data for which you may be interested.  There are multiple places to go query and Add to Filter Cart (Sometimes called Download).  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you add subjects, sometimes it may take a few minutes to populate.  You can continue to do other things during this time. 

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data available for the subjects selected will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be available.  However, if you want to see all of the clinical and phenotype, then select, "Find All Subject Data" to see all the data avaialble for those subjects.  

when a secord or third filter is applied, an AND condition is used to determine the subjects that are exist in all filters.  If the subject does not appear in any filter, that subjects data will be excluded from your filter cart. Given the sparcity of data in the NDA, it is possible for no subjects to appear across filters.  If that happens, clear your filter cart, and start over.  

The NDA is looking to enhance query/filtering.  Until additional tools become available, it is best to package more data than you need and then package and download the data and use other tools to further restrict and analyze the data.  If you have any questions on data access, are interested in using avaialble web services or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Data Structures with shared data
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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
953Shallow EpisodicfMRI06/20/2018
952Semantic EncodingfMRI06/20/2018
951Resting StatefMRI06/20/2018
949Resting StatefMRI06/18/2018
943Emotional Face TaskfMRI06/13/2018
941Meridians localizerfMRI06/07/2018
940V1 localizer movingDotsfMRI06/07/2018
938MT localizer dots movingDotsfMRI06/07/2018
937MT localizer gratings movingDotsfMRI06/07/2018
936V1 localizer peripheryfMRI06/07/2018
935Contrast peripheryfMRI06/07/2018
934MT localizer peripheryfMRI06/07/2018
933Pilot01: Posner Cueing with st-tACSEye Tracking06/06/2018
932Social- Theory of Mind Localizer TaskfMRI06/01/2018
931Faces TaskfMRI05/31/2018
929Moral RatingfMRI05/30/2018
928Pain Detection fMRI05/30/2018
927Reward TaskfMRI05/30/2018
926Go no Go TaskfMRI05/30/2018
924EARLI Placenta WGBSOmics05/24/2018
923Anxiety-CBT fMRI (pre-post) - Version 4 BlockfMRI05/15/2018
922Anxiety-CBT fMRI (pre-post) - Version 3 BlockfMRI05/15/2018
921Anxiety-CBT fMRI (pre-post) - Version 2 BlockfMRI05/15/2018
920Anxiety-CBT fMRI (pre-post) - Version 1 BlockfMRI05/15/2018
919Neural overlap in item representations across episodes impairs context memoryfMRI05/11/2018
918ReferenceTissue: U01MH106892_Brain_Amplicon_SeqOmics05/08/2018
914PFC analysis in bloodOmics04/27/2018
913Task and emotional content driven visual competitionfMRI04/27/2018
912Task and emotional content driven visual competitionEEG04/23/2018
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
Collection - Add Experiment
Add Supporting Documentation
Select File

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.






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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Toward Outcome Measurement of Anxiety in Youth with Autism Spectrum Disorders
Lawrence D. Scahill 
This four-year multisite project will advance outcome measurement of anxiety in future clinical trials in youth with autism spectrum disorders (ASDs). Program announcement (PAR-11-045) declares that the dearth of outcome measures in developmentally disabled populations is a major impediment for drug research in developmentally disabled populations. Impairing anxiety is common in youth with ASDs and a plausible treatment target, but poorly studied (White et al., 2009; van Steensel et al., 2011; King et al., 2009). There are well-accepted outcome measures for anxiety in typically developing youth (RUPP Anxiety Group, 2001; Walkup et al., 2008). Given the language and cognitive deficits in ASDs, these measures are not suitable for youth with ASDs without modification. The need for outcome measures for anxiety in youth with ASDs has also been noted by consumer groups (www.autismspeaks.org). We have assembled an outstanding team of investigators and consultants to develop a parent-rated and a clinician-rated instrument for measuring anxiety in youth with ASDs who participate in clinical trials. We propose a mixed method approach in line with the FDA monograph: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims (www.Fda.Gov/Cder/Guidance). In Yr 1, focus groups with parents will explore the manifestations of anxiety in children with ASDs. This information will be used to refine the CASI Anxiety scale (DSM-IV-based parent-rating) and modify the clinician-rated Pediatric Anxiety Rating Scale (PARS). Yr 2 will collect data on the revised CASI Anx scale (20-25 items) in 900 children with ASD ages 5 to 17 years on a secure web site. We will examine the distribution, internal consistency, factor structure and item analysis of this parent-rated scale. Test-retest reliability of the scale will be evaluated in a subsample of online respondents and a sample of subjects assessed in person. Validity of the CASI Anx scale will be evaluated by contrasting the correlations with another parent-rated measure of anxiety (convergent validity) and with measures of repetitive behavior, social disability and irritability (divergent validity). The revised PARS will be collected via in person assessments of 90 subjects to evaluate reliability (inter-rater, internal consistency) and validity in Yr 3. In Yrs 3-4, a high anxiety subgroup (above threshold on the CASI Anx scale) will be compared to controls (ASD with low anxiety) on physiological measures of heart rate [HR], heart rate variability [HRV] and electrodermal activity [EDA]). HR, HRV and EDA will be measured at rest and under mildly anxiety provoking conditions. Results from this exploratory investigation may identify read outs for early testing of compounds for anxiety in ASDs. The project has four deliverables: focus group results (Yr 2); a reliable and valid parent-rated anxiety outcome measure (Yr 3); a reliable and valid clinician-rated anxiety measure (Yr 4); preliminary HRV and EDA findings (soon after the grant period).
Funding Completed
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NIH - Extramural None

R01MH099021-01 Toward Outcome Measurement of Anxiety in Youth with Autism Spectrum Disorders 09/15/2012 05/31/2018 0 1 EMORY UNIVERSITY $2,652,375.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

ACE Family Medical History Clinical Assessments 115
ACE Subject Medical History Clinical Assessments 118
Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 136
Anxiety Disorders Interview Schedule Parent (ADIS IV P) Clinical Assessments 107
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 7
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 2 Clinical Assessments 6
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 92
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 4 Clinical Assessments 5
Caregiver Strain Questionnaire Clinical Assessments 123
Clinical Global Impression (CGI) Clinical Assessments 118
Demographics Clinical Assessments 139
Height and Weight Clinical Assessments 124
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 125
Research Subject Clinical Assessments 138
Screen for Child Anxiety Related Disorders (SCARED), Parent/Child Clinical Assessments 123
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 136
Stanford-Binet Intelligence Scales, Fifth Edition (SB5) Clinical Assessments 117
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 80
Vineland-II - Survey Form (2005) Clinical Assessments 20

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29777110Create StudyUsing network analysis for the prediction of treatment dropout in patients with mood and anxiety disorders: A methodological proof-of-concept study.Scientific reportsLutz W, Schwartz B, Hofmann SG, Fisher AJ, Husen K, Rubel JAMay 2018Not Determined
29550689Create StudyRethinking avoidance: Toward a balanced approach to avoidance in treating anxiety disorders.Journal of anxiety disordersHofmann SG, Hay ACApril 2018Not Determined
29451967Create StudyCognitive behavioral therapy for anxiety and related disorders: A meta-analysis of randomized placebo-controlled trials.Depression and anxietyCarpenter JK, Andrews LA, Witcraft SM, Powers MB, Smits JAJ, Hofmann SGJune 2018Not Determined
29434552Create StudyWhy Cognitive Behavioral Therapy Is the Current Gold Standard of Psychotherapy.Frontiers in psychiatryDavid D, Cristea I, Hofmann SGJanuary 2018Not Determined
28559206Create StudyWorking hard for oneself or others: Effects of oxytocin on reward motivation in social anxiety disorder.Biological psychologyJuly 2017Not Determined
28440699Create StudyEffect of treatments for depression on quality of life: a meta-analysis.Cognitive behaviour therapyHofmann SG, Curtiss J, Carpenter JK, Kind SJune 2017Not Determined
28104735Create StudyInitial severity of depression and efficacy of cognitive-behavioural therapy: individual-participant data meta-analysis of pill-placebo-controlled trials.The British journal of psychiatry : the journal of mental scienceFurukawa TA, Weitz ES, Tanaka S, Hollon SD, Hofmann SG, Andersson G, Twisk J, Derubeis RJ, Dimidjian S, Hegerl U, Mergl R, Jarrett RB, Vittengl JR, Watanabe N, Cuijpers PMarch 2017Not Determined
27694457Create StudyA Complex Network Perspective on Clinical Science.Perspectives on psychological science : a journal of the Association for Psychological ScienceHofmann SG, Curtiss J, Mcnally RJSeptember 2016Not Determined
27315514Create StudyRANDOMIZED TRIAL OF D-CYCLOSERINE ENHANCEMENT OF COGNITIVE-BEHAVIORAL THERAPY FOR PANIC DISORDER.Depression and anxietyOtto MW, Pollack MH, Dowd SM, Hofmann SG, Pearlson G, Szuhany KL, Gueorguieva R, Krystal JH, Simon NM, Tolin DFAugust 2016Not Determined
27182094Create StudyInterpersonal Emotion Regulation Questionnaire (IERQ): Scale Development and Psychometric Characteristics.Cognitive therapy and researchHofmann SG, Carpenter JK, Curtiss JJune 2016Not Determined
27009055Create StudyPsychodynamic therapy: a poorly defined concept with questionable evidence.Evidence-based mental healthHofmann SGMay 2016Not Determined
26670323Create StudyFactor Structure of the Parent-Report Mood and Feelings Questionnaire (MFQ) in an Outpatient Mental Health Sample.Journal of abnormal child psychologyJeffreys M, Rozenman M, Gonzalez A, Warnick EM, Dauser C, Scahill L, Woolston J, Robin Weersing VAugust 2016Not Determined
26222127Create StudyAttention allocation in social anxiety during a speech.Cognition & emotionLin M, Hofmann SG, Qian M, Kind S, Yu HSeptember 2016Not Determined
26094200Create StudyEffect of intranasal oxytocin administration on psychiatric symptoms: A meta-analysis of placebo-controlled studies.Psychiatry researchHofmann SG, Fang A, Brager DNAugust 30, 2015Not Determined
25882391Create StudySensitivity of the modified Children's Yale-Brown Obsessive Compulsive Scale to detect change: Results from two multi-site trials.Autism : the international journal of research and practiceScahill L, Sukhodolsky DG, Anderberg E, Dimitropoulos A, Dziura J, Aman MG, Mccracken J, Tierney E, Hallett V, Katz K, Vitiello B, Mcdougle CFebruary 2016Not Determined
25827035Create StudyTreatments for social anxiety disorder: considerations regarding psychodynamic therapy findings.The American journal of psychiatryHofmann SG, Barlow DH, Clark DM, Hollon SD, Mayo-Wilson EApril 2015Not Relevant
25774643Create StudyPsychometric properties of an innovative self-report measure: The Social Anxiety Questionnaire for adults.Psychological assessmentCaballo VE, Arias B, Salazar IC, Irurtia MJ, Hofmann SG, September 2015Not Determined
25072016Create StudyAutism Spectrum Disorder: Defining Dimensions and Subgroups.Current developmental disorders reportsOusley O, Cermak TMarch 1, 2014Not Determined
24342389Create StudyChildren's Yale-Brown obsessive compulsive scale in autism spectrum disorder: component structure and correlates of symptom checklist.Journal of the American Academy of Child and Adolescent PsychiatryScahill L, Dimitropoulos A, McDougle CJ, Aman MG, Feurer ID, McCracken JT, Tierney E, Pu J, White S, Lecavalier L, Hallett V, Bearss K, King B, Arnold LE, Vitiello BJanuary 2014Not Determined
24158679Create StudyMeasuring anxiety as a treatment endpoint in youth with autism spectrum disorder.Journal of autism and developmental disordersLecavalier L, Wood JJ, Halladay AK, Jones NE, Aman MG, Cook EH, Handen BL, King BH, Pearson DA, Hallett V, Sullivan KA, Grondhuis S, Bishop SL, Horrigan JP, Dawson G, Scahill LMay 2014Not Determined
23800481Create StudyThe role of emotion regulation in autism spectrum disorder.Journal of the American Academy of Child and Adolescent PsychiatryMazefsky CA, Herrington J, Siegel M, Scarpa A, Maddox BB, Scahill L, White SWJuly 2013Not Determined

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Clinical Global Impression (CGI) info iconApproved
Preferences for Activities of Children info iconApproved
Clinical Global Impression of Severity info iconApproved
ABC Community info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Medical History info iconApproved
Physical Exam info iconApproved
Research Subject and Pedigree info iconApproved
ADOS info iconApproved
Pediatric Anxiety Rating Scale (PARS) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Demographics info iconApproved
Caregiver Strain Questionnaire info iconApproved
Screen for Childhood Anxiety Related Emotional Disorders (SCARED) info iconApproved
Anxiety Disorders Interview Schedule info iconApproved
Stanford Binet info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Childrens Yale-Brown OC Scale (CY-BOCS) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
No records found.