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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Data Structures with shared data
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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

Please provide a reason for the requested submission exemption and the
time-frame during which the exemption will be active.
Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
The Social Brain in Schizophrenia and Autism Spectrum Disorders
Michal Assaf 
Autism measures, diagnostic measures, EEG and fMRI data
NDAR
Enrolling
Shared
$2,555,439.00
134
600
318

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No Data Shared

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Chart Expander
NIH - Extramural None


R01MH095888-01 The Social Brain in Schizophrenia and Autism Spectrum Disorders 07/05/2012 06/30/2017 600 318 HARTFORD HOSPITAL $2,555,439.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
113Empathy for physical pain11/19/2013ApprovedEEG
114Empathy for Social Pain11/20/2013ApprovedEEG
115Control Condition - Objects11/20/2013ApprovedEEG
217Domino-NDARKY339NH401/12/2015ApprovedfMRI
219Domino-NDARMY489LHC01/12/2015ApprovedfMRI
220Domino-NDARJJ992EHJ01/12/2015ApprovedfMRI
221Domino-NDARAM139FMF01/12/2015ApprovedfMRI
225Domino-NDARDZ103BFY01/12/2015ApprovedfMRI
226Domino-NDARUB657KAF01/12/2015ApprovedfMRI
228Domino-NDARUD984LVB01/12/2015ApprovedfMRI
230Domino-NDARJF224HU901/12/2015ApprovedfMRI
209Domino-NDARVJ555TGV01/05/2015ApprovedfMRI
229Domino-NDARWU345VWL01/12/2015ApprovedfMRI
286Domino-NDARUR264UC204/02/2015ApprovedfMRI
288Domino-NDARTU546ZAN04/02/2015ApprovedfMRI
290Domino-NDARKA309TA804/02/2015ApprovedfMRI
442Domino02/29/2016ApprovedfMRI
215Domino-NDARXJ280FMM01/12/2015ApprovedfMRI
216Domino-NDARAZ912TJD01/12/2015ApprovedfMRI
218Domino-NDARDU110DKR01/12/2015ApprovedfMRI
222Domino-NDARPM290LCR01/12/2015ApprovedfMRI
223Domino-NDARKF479YWV01/12/2015ApprovedfMRI
224Domino-NDARCA181NBN01/12/2015ApprovedfMRI
227Domino-NDARUU049YGD01/12/2015ApprovedfMRI
231Domino-NDARWL686PZR01/12/2015ApprovedfMRI
232Domino-NDARTD650ANL01/12/2015ApprovedfMRI
233Domino-NDARMA630GXW01/12/2015ApprovedfMRI
234Domino-NDARZL464LP301/12/2015ApprovedfMRI
235Domino-NDARFE109KR601/12/2015ApprovedfMRI
236Domino-NDARMR183NJ001/12/2015ApprovedfMRI
289Domino-NDARVL456LY304/02/2015ApprovedfMRI
291Domino-NDARHA689AFL04/02/2015ApprovedfMRI
333Domino-NDARBM216HWV07/08/2015ApprovedfMRI
334Domino-NDARMX344LAN07/08/2015ApprovedfMRI
335Domino-NDARMX051PLG07/08/2015ApprovedfMRI
336Domino-NDARZN300MFA07/08/2015ApprovedfMRI
337Domino-NDARHN998PYE07/08/2015ApprovedfMRI
338Domino-NDARTP437FA107/08/2015ApprovedfMRI
339Domino-NDARRU826DTU07/08/2015ApprovedfMRI
340Domino-NDARWW415NC607/08/2015ApprovedfMRI
341Domino-NDARJB525DPH07/08/2015ApprovedfMRI
342Domino-NDARWX815UA307/08/2015ApprovedfMRI
343Domino-NDARAJ114CNZ07/08/2015ApprovedfMRI
344Domino-NDAREF482KJ707/08/2015ApprovedfMRI
345Domino-NDARJM920DPY07/08/2015ApprovedfMRI
346Domino-NDARRT348FLQ07/08/2015ApprovedfMRI

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Ambiguous Intentions Hostility Questionnaire Clinical Assessments 122
Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 16
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 4 Clinical Assessments 121
Chapman Scales of Psychosis Proneness Clinical Assessments 126
Current Mood Visual Analogue Scale Clinical Assessments 116
Difficulties in Emotion Regulation Scale Clinical Assessments 124
Domino Post-Scan Debriefing/H-C Version 2 Clinical Assessments 112
Fagerstrom Test for Nicotine Dependence Clinical Assessments 114
Heinrich's Quality of Life Scale Clinical Assessments 122
Laterality Test Clinical Assessments 67
MRI Screening Form Clinical Assessments 121
ONRC Health Questionnaire Clinical Assessments 119
Psychosocial Interview Clinical Assessments 119
Research Subject Clinical Assessments 46
Rosenberg Self-Esteem Scale Clinical Assessments 125
Scales for the Assessment of Positive/Negative Symptoms Clinical Assessments 69
Schizotypal Personality Questionnaire Clinical Assessments 51
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 19
Structured Clinical Interview for DSM-IV Clinical Assessments 112
Structured Clinical Interview for the Positive and Negative Syndrome Scale Clinical Assessments 71
Wechsler Adult Intelligence Scale III Clinical Assessments 119
Yale Emotion Videos Clinical Assessments 120
Yale Telephone Screening Form Clinical Assessments 132

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
No records found.

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Scales for the Assessment of Positive/Negative Symptoms info iconApproved
Quality of Life Assessment info iconApproved
Wechsler Adult Intelligence Scale info iconApproved
Research Subject and Pedigree info iconApproved
Medical History info iconApproved
Psychosocial Interview info iconApproved
Difficulties in Emotion Regulation Scale info iconApproved
ADI-R info iconApproved
ADOS info iconApproved
Yale Emotion Videos info iconApproved
Schizotypal Personality Questionnaire info iconApproved
Rosenberg Self-Esteem Scale info iconApproved
Telephone Screening Form info iconApproved
Laterality Test info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Ambiguous Intentions Hostility Questionnaire info iconApproved
MRI Screening Form info iconApproved
Domino Post-Scan Debriefing/H-C Version 2 info iconApproved
Chapman Scales of Psychosis Proneness info iconApproved
Current Mood Visual Analogue Scale info iconApproved
Fagerstrom Test for Nicotine Dependence info iconApproved
Structured Clinical Interview for DSM (SCID) info iconApproved
Positive and Negative Syndrome Scale (PANSS) info iconApproved
Demographics info iconApproved
Interpersonal Reactivity Index info iconApproved
Hinting Task info iconApproved
Social Functioning Scale (SFS) info iconApproved
Social Skills Performance Assessment (SSPA) info iconApproved
Bell Lysaker Emotion Recognition Test (BLERT) info iconApproved
Trustworthiness Task info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
Wechsler Test of Adult Reading info iconApproved
EEG info iconApproved
Empathy Quotient (EQ) info iconApproved
Physical Exam info iconApproved
Domino Task info iconApproved
Bermond-Vorst Alexithymia Questionnaire - B (BVAQ-B) info iconApproved
Reading the Mind in the Eyes info iconApproved
Bell Object Relations Reality Testing Inventory (BORRTI) info iconApproved
Mayer-Salovey-Caruso Emotional Intelligence Test (MSCEIT): Managing Emotions info iconApproved
Social Attribution Task Multiple Choice (SAT-MC) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study Name Description Number of Subjects
Collection / Total
Data Use State
Revising the Social Communication Questionnaire scoring procedures for Autism Spectrum Disorder and potential Social Communication Disorder In analyzing data from the National Database for Autism Research, we examine revising the Social Communication Questionnaire (SCQ), a commonly used screening instrument for Autism Spectrum Disorder. A combination of Item Response Theory and Mokken scaling techniques were utilized to achieve this and abbreviated scoring of the SCQ is suggested. The psychometric sensitivity of this abbreviated SCQ was examined via bootstrapped Receiver Operator Characteristic (ROC) curve analyses. Additionally, we examined the sensitivity of the abbreviated and total scaled SCQ as it relates to a potential diagnosis of Social (Pragmatic) Communication Disorder (SCD). As SCD is a new disorder introduced with the fifth edition of the Diagnostic and Statistical Manual (DSM-5), we identified individuals with potential diagnosis of SCD among individuals with ASD via mixture modeling techniques using the same NDAR data. These analyses revealed two classes or clusters of individuals when considering the two core areas of impairment among individuals with ASD: social communication and restricted, repetitive patterns of behavior. 1 / 1021 Secondary Analysis Shared
* Data not on individual level