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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
894Dot ProbeEye Tracking03/07/2018
893Startle Habituation and Shock Sensitivity EvaluationEEG03/03/2018
892NPU EEG Task EEG03/03/2018
891Duke ACE ETEye Tracking03/02/2018
888Emotion 1.1 Determining context effects during potential threatfMRI02/26/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked (EyeTracking)Eye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
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Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.






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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


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Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

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Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Minimally Verbal ASD: From Basic Mechanisms to Innovative Interventions
Helen Tager-Flusberg 
Our ACE, located at Boston University, brings together researchers from across the university and collaborators from Harvard Medical School, Northeastern University and Albert Einstein College of Medicine. The interconnected projects in the ACE include: a novel intervention to promote spoken language in school-aged children with ASD (Project I); investigation of biological markers of treatment response and outcome (Projects I, II, and III); investigation of mechanisms that might underlie the failure to speak including (a) structural and functional connectivity impairments in key nodes of the speech production network according to the DIVA model (Project 11); (b) abnormalities in the perception, organization and analysis of auditory scenes as indexed in electrophysiological responses and neural oscillatory patterns (Project III); disruptions in excitatory and inhibitory neuronal pathways in key prefrontal cortical areas associated with language using high resolution methods to investigate white matter and axonal growth proteins in tissue samples (Project IV). The projects are united and served by an Administration and Data Management Core (A), a Research Training and Education Core (B) and a Clinical Core (C), which will carry out comprehensive assessments using standard and novel experimental measures to capture the heterogeneous phenotypes of minimally verbal children with ASD, and that will be used to explain variability in treatment response and mechanistic factors identified in the Projects. Together, the research conducted in our ACE will significantly advance our understanding of this neglected end of the autism spectrum, provide innovative approaches to assessment and treatment, pave the way for identifying biological markers predict who will fail to acquire speech, and highlight potential molecular targets for therapeutic interventions.
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NIH - Extramural None

P50DC013027-01 Minimally Verbal ASD: From Basic Mechanisms to Innovative Interventions 09/04/2012 08/31/2018 680 122 BOSTON UNIVERSITY (CHARLES RIVER CAMPUS) $9,415,528.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

ACE Family Medical History Clinical Assessments 118
ACE Subject Medical History Clinical Assessments 115
Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 88
Adapted ADOS Module 1 Clinical Assessments 30
Adapted ADOS Module 2 Clinical Assessments 8
Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 96
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 27
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 2 Clinical Assessments 8
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 8
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 4 Clinical Assessments 43
Child/Adolescent Symptom Inventory Clinical Assessments 111
Children's Communication Checklist - 2 Clinical Assessments 66
Comprehensive Assessment of Spoken Language Clinical Assessments 51
Comprehensive Test of Phonological Processing (CTOPP) Clinical Assessments 49
Dean Handedness Inventory Clinical Assessments 119
Emotion Dysregulation Inventory (EDI) Clinical Assessments 111
Kaufman Speech Praxis Test Clinical Assessments 43
Mullen Scales of Early Learning Clinical Assessments 28
PQ Demographics Clinical Assessments 117
PQ Intervention History Clinical Assessments 97
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 118
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 114
Sensory Profile Short Clinical Assessments 115
Vineland-II - Survey Form (2005) Clinical Assessments 96
WASI-2 Clinical Assessments 52

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29508403Create StudyFrom intuition to intervention: developing an intonation-based treatment for autism.Annals of the New York Academy of SciencesChenausky KV, Schlaug GMarch 2018Not Determined
29408312Create StudyMeta-analysis and systematic review of the literature characterizing auditory mismatch negativity in individuals with autism.Neuroscience and biobehavioral reviewsSchwartz S, Shinn-Cunningham B, Tager-Flusberg HFebruary 2018Not Determined
28976309Create StudySimple, Transparent, and Flexible Automated Quality Assessment Procedures for Ambulatory Electrodermal Activity Data.IEEE transactions on bio-medical engineeringKleckner IR, Jones RM, Wilder-Smith O, Wormwood JB, Akcakaya M, Quigley KS, Lord C, Goodwin MSOctober 2017Relevant
28928645Create StudyAuditory-Motor Mapping Training in a More Verbal Child with Autism.Frontiers in human neuroscienceChenausky KV, Norton AC, Schlaug GJanuary 2017Not Determined
27829034Create StudyAuditory-Motor Mapping Training: Comparing the Effects of a Novel Speech Treatment to a Control Treatment for Minimally Verbal Children with Autism.PloS oneChenausky K, Norton A, Tager-Flusberg H, Schlaug GJanuary 2016Not Relevant
26173965Create StudyA highly penetrant form of childhood apraxia of speech due to deletion of 16p11.2.European journal of human genetics : EJHGFedorenko E, Morgan A, Murray E, Cardinaux A, Mei C, Tager-Flusberg H, Fisher SE, Kanwisher NFebruary 2016Not Determined
25294649Create StudyApplying machine learning to facilitate autism diagnostics: pitfalls and promises.Journal of autism and developmental disordersBone D, Goodwin MS, Black MP, Lee CC, Audhkhasi K, Narayanan SMay 2015Not Determined
24839879Create StudyPromoting communicative speech in minimally verbal children with autism spectrum disorder.Journal of the American Academy of Child and Adolescent PsychiatryTager-Flusberg HJune 2014Not Determined
24124067Create StudyMinimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.Autism research : official journal of the International Society for Autism ResearchTager-Flusberg H, Kasari CDecember 2013Not Determined
22524376Create StudyAtypical hemispheric asymmetry in the arcuate fasciculus of completely nonverbal children with autism.Annals of the New York Academy of SciencesWan CY, Marchina S, Norton A, Schlaug GApril 2012Not Determined

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
28976309Create StudySimple, Transparent, and Flexible Automated Quality Assessment Procedures for Ambulatory Electrodermal Activity Data.IEEE transactions on bio-medical engineeringKleckner IR, Jones RM, Wilder-Smith O, Wormwood JB, Akcakaya M, Quigley KS, Lord C, Goodwin MSOctober 2017
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Vineland (Parent and Caregiver) info iconApproved
ADI-R info iconApproved
Medical History info iconApproved
Kaufman Speech Praxis Test info iconApproved
Research Subject and Pedigree info iconApproved
Sensory Profile info iconApproved
Handedness Form info iconApproved
ADOS info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
Childrens Communication Checklist-2 (CCC-2) info iconApproved
Child and Adolescent Symptom Inventory (CASI) info iconApproved
Ravens Coloured Progressive Matrices (CPM) info iconApproved
ABC Community info iconApproved
Comprehensive Assessment of Spoken Language (CASL) info iconApproved
EEG info iconApproved
Wechsler Abbreviated Scale of Intelligence (WASI) info iconApproved
Comprehensive Test of Phonological Processing (CTOPP) info iconApproved
Demographics info iconApproved
Medical History info iconApproved
Mullen Scales of Early Learning info iconApproved
Emotion Dysregulation Inventory (EDI) info iconApproved
genomics/omics info iconApproved
Sympathetic and Parasympathetic Activity info iconApproved
Leiter International Performance Scale-Revised (Leiter-R) info iconApproved
LENA - Frequency of Speech info iconApproved
Prosody Measurement info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
No records found.