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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

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SelectExperiment IdExperiment NameExperiment Type
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  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
886RestfMRI02/14/2018
885SARTfMRI02/14/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
877PRV-005-EEGEEG01/22/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked eye trackingEye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
869cyberballfMRI01/12/2018
868MDD_PilotfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
864parvizi_eeg_118EEG01/12/2018
863parvizi_eeg_117EEG01/12/2018
862parvizi_eeg_116EEG01/12/2018
861parvizi_eeg_115EEG01/12/2018
860parvizi_eeg_114EEG01/12/2018
859parvizi_eeg_113EEG01/12/2018
858PRV-003-EEGEEG01/12/2018
857PRV-004-EEGEEG01/12/2018
856PRV-007-EEGEEG01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
854PRV-002-EEGEEG01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
852Paired AssociatesfMRI01/11/2018
851PRV-001-EEGEEG01/11/2018
850Reward ProcessingfMRI01/11/2018
849Resting EEG (1024 samples/s)EEG01/11/2018
845Fast face -1 runfMRI01/10/2018
844MIST_MAST_fMRIfMRI01/10/2018
843RTT AHA-1Omics01/09/2018
84230 words (simultaneous fMRI and EEG acquisition)EEG01/08/2018
841Neural Correlates of Episodic Retrieval fMRI01/08/2018
84030 words (simultaneous fMRI and EEG acquisition)fMRI01/08/2018
838Memory Guided Saccade Encode and Maintenance v3fMRI01/05/2018
837Memory Guided Saccade Encode and Maintenance v2fMRI01/05/2018
836Food ExposurefMRI01/03/2018
835Model ExposurefMRI01/02/2018
834BlankingEye Tracking12/28/2017
833DoubleStepEye Tracking12/26/2017
832Memory Guided Saccade Encode and Maintenance v1 fMRI12/21/2017
831Mixed Anti and Pro (vgs) saccade mixed blocked taskfMRI12/21/2017
830T1 AlternativefMRI12/19/2017
829fMRI Movie Trailer Video 2fMRI12/18/2017
828fMRI Movie Trailer Video 1fMRI12/18/2017
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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption
Ami Klin 
The Emory ACE joins 8 laboratories in 3 institutions, creating a center for clinical and translational science built-from its outset--on the expectation of transformative impact on the community. Laboratories from the Marcus Autism Center, Emory University School of Medicine, and Yerkes National Primate Research Center combine methodological and conceptual expertise in child development, behavioral neuroscience, speech science, molecular genetics, and treatment research; all against the backdrop of a city-wide initiative for autism research driven by the largest pediatric healthcare system In the country, Children's Healthcare of Atlanta. The thematic mission of the Emory ACE guides each of its 5 projects and 4 cores: to unravel the developmental complexities of risk and resilience in autism spectrum disorders, so that we may advance the most effective and successful treatments for children. Projects I and II quantify the developmental unfolding of social visual (PI) and social vocal (Pll) engagement, from birth until 24 months of age, to identify profiles for positive outcome as well as risk factors for disability. Project III advances rigorous, randomized-control trials for treatment of ASD into infancy and toddler hood, testing the extent to which developmental trajectories of social engagement (Projects I and II) predict treatment response and outcome. Also starting in infancy. Projects IV and V established for normative social development (PV) and a genetic means to its disruption (PIV) a nonhuman primate model for interrogating the underpinnings of social disability in genes, brain, and behavior. Together, these Projects advance our understanding of the developmental unfolding of autism, and set the stage for changing the course of ASD prior to the point when disability i seven fully manifest. Four Cores provide the resources to support these goals, spanning Assessment, Informatics, Administration, and Training. In its efforts to meet and exceed the aspirational goals for autism set forth by the NIH Interagency Autism Coordinating Committee (lACC), the Emory ACE creates in its wake a new scientific community, focused on the translational social neuroscience of autism spectrum disorders, in the service of children and families.
NDAR
Funding Completed
Shared
$8,941,187.00
254
1974
528
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NIH - Extramural None


P50MH100029-01 Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption 09/04/2012 05/31/2017 1974 528 EMORY UNIVERSITY $8,941,187.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

ACE Family Medical History Clinical Assessments 254
ACE Subject Medical History Clinical Assessments 106
ACE Subject Physical Exam Clinical Assessments 68
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 110
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 2 Clinical Assessments 46
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Toddler Module Clinical Assessments 87
BSRC Intervention History Form Clinical Assessments 185
Child Behavior Checklist (CBCL) 1-5 Clinical Assessments 26
Demographics Clinical Assessments 253
Mullen Scales of Early Learning Clinical Assessments 198
Research Subject Clinical Assessments 253
Sensory Profile Toddler Clinical Assessments 106
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 27
Social Responsiveness Scale (SRS) - Preschool Version Clinical Assessments 26
Vineland-II - Survey Form (2005) Clinical Assessments 195

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29410484Create StudyA Longitudinal Investigation of Preferential Attention to Biological Motion in 2- to 24-Month-Old Infants.Scientific reportsSifre R, Olson L, Gillespie S, Klin A, Jones W, Shultz SFebruary 2018Not Determined
28700580Create StudyInfant viewing of social scenes is under genetic control and is atypical in autism.NatureConstantino JN, Kennon-Mcgill S, Weichselbaum C, Marrus N, Haider A, Glowinski AL, Gillespie S, Klaiman C, Klin A, Jones WJuly 2017Relevant
26113807Create StudyRobust estimation of group-wise cortical correspondence with an application to macaque and human neuroimaging studies.Frontiers in neuroscienceLyu I, Kim SH, Seong JK, Yoo SW, Evans A, Shi Y, Sanchez M, Niethammer M, Styner MA2015Not Determined
26089584Create StudyAutomatic Tissue Segmentation of Neonate Brain MR Images with Subject-specific Atlases.Proceedings of SPIE--the International Society for Optical EngineeringCherel M, Budin F, Prastawa M, Gerig G, Lee K, Buss C, Lyall A, Consing KZ, Styner MFebruary 21, 2015Not Determined
26028802Create StudyLOGISMOS-B for Primates: Primate Cortical Surface Reconstruction and Thickness Measurement.Proceedings of SPIE--the International Society for Optical EngineeringOguz I, Styner M, Sanchez M, Shi Y, Sonka M2015Not Determined
25745376Create StudyToward innovative, cost-effective, and systemic solutions to improve outcomes and well-being of military families affected by autism spectrum disorder.The Yale journal of biology and medicineKlin, Ami; Wetherby, Amy M; Woods, Juliann; Saulnier, Celine; Stapel-Wax, Jennifer; Klaiman, Cheryl; Jones, Warren; Rubin, Emily; Scahill, Lawrence; Call, Nathan; Bearss, Karen; Gunter, Chris; Courtemanche, Charles J; Lemieux, Anthony; Cox, James C; Mandell, David S; Van Decar, James P; Miller, Ronald A; Shireman, Cherri LMarch 2015Not Relevant
25726820Create StudyReducing age of autism diagnosis: developmental social neuroscience meets public health challenge.Revista de neurologiaKlin A, Klaiman C, Jones WFebruary 25, 2015Not Determined
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska K, Shic F, Macari S, Campbell DJ, Brian J, Landa R, Hutman T, Nelson CA, Ozonoff S, Tager-Flusberg H, Young GS, Zwaigenbaum L, Cohen IL, Charman T, Messinger DS, Klin A, Johnson S, Bryson SDecember 2014Not Determined
25445180Create StudySocial visual engagement in infants and toddlers with autism: early developmental transitions and a model of pathogenesis.Neuroscience and biobehavioral reviewsKlin, Ami; Shultz, Sarah; Jones, WarrenMarch 2015Not Relevant
24683983Create StudyGroup-wise cortical correspondence via sulcal curve-constrained entropy minimization.Information processing in medical imaging : proceedings of the ... conferenceLyu I, Kim SH, Seong JK, Yoo SW, Evans AC, Shi Y, Sanchez M, Niethammer M, Styner MA2013Not Determined
24327553Create StudyPCLR: phase-constrained low-rank model for compressive diffusion-weighted MRI.Magnetic resonance in medicineGao H, Li L, Zhang K, Zhou W, Hu XNovember 2014Not Determined
24196715Create StudyAttention to eyes is present but in decline in 2-6-month-old infants later diagnosed with autism.NatureJones W, Klin ADecember 19, 2013Not Determined
23603286Create StudyMapping putative hubs in human, chimpanzee and rhesus macaque connectomes via diffusion tractography.NeuroImageLi L, Hu X, Preuss TM, Glasser MF, Damen FW, Qiu Y, Rilling JOctober 15, 2013Not Determined
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
28700580Create StudyInfant viewing of social scenes is under genetic control and is atypical in autism.NatureConstantino JN, Kennon-Mcgill S, Weichselbaum C, Marrus N, Haider A, Glowinski AL, Gillespie S, Klaiman C, Klin A, Jones WJuly 2017
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Mullen Scales of Early Learning info iconApproved
Intervention History info iconApproved
Medical History info iconApproved
Goldman-Fristoe Test of Articulation info iconApproved
Physical Exam info iconApproved
Research Subject and Pedigree info iconApproved
Sensory Profile info iconApproved
ADOS info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Demographics info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Communication and Symbolic Behavior Scales (CSBS) info iconApproved
LENA - Frequency of Speech info iconApproved
Developmental Profiling of Spoken Language Development info iconApproved
Measures of Active Engagement and Transactional Support (MAETS) info iconApproved
Early Screening of Autistic Traits Questionnaire (ESAT) info iconApproved
Systematic Observation of Red Flags for ASD in Young Children (SORF) info iconApproved
Eye Tracking info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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