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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Data Expected Item Original Sharing Date New Sharing Date

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption
Ami Klin 
The Emory ACE joins 8 laboratories in 3 institutions, creating a center for clinical and translational sciencebuilt-from its outset--on the expectation of transformative impact on the community. Laboratories from the Marcus Autism Center, Emory University School of Medicine, and Yerkes National Primate Research Center combine methodological and conceptual expertise in child development, behavioral neuroscience, speech science, molecular genetics, and treatment research; all against the backdrop of a city-wide initiative for autism research driven by the largest pediatric healthcare system In the country, Children's Healthcare of Atlanta. The thematic mission of the Emory ACE guides each of its 5 projects and 4 cores: to unravel thedevelopmental complexities of risk and resilience in autism spectrum disorders, so that we may advance the most effective and successful treatments for children. Projects I and II quantify the developmental unfolding of social visual (PI) and social vocal (Pll) engagement, from birth until 24 months of age, to identify profilesfor positive outcome as well as risk factors for disability. Project III advances rigorous, randomized-control trials for treatment of ASD into infancy and toddlerhood, testing the extent to which developmental trajectories of social engagement (Projects I and II) predict treatment response and outcome. Also startingin infancy. Projects IV and V established for normative social development (PV) and a genetic means to its disruption (PIV) a nonhuman primate model for interrogating the underpinnings of social disability ingenes, brain, and behavior. Together, these Projects advance our understanding of the developmental unfolding of autism, and set the stage for changing the course of ASD prior to the point when disability iseven fully manifest. Four Cores provide the resources to support these goals, spanning Assessment, Informatics, Administration, and Training. In its efforts to meet and exceed the aspirational goals for autism set forth by the NIH Interagency Autism Coordinating Committee (lACC), the Emory ACE creates in its wake a new scientific community, focused on the translational social neuroscience of autism spectrum disorders, in the service of children and families.
NDAR
Enrolling
Shared
$8,941,187.00
254
1974
528
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NIH - Extramural None


P50MH100029-01 Mechanisms of Risk and Resilience in ASD: Ontogeny, Phylogeny and Gene Disruption 09/04/2012 05/31/2017 1974 528 EMORY UNIVERSITY $8,941,187.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

ACE Family Medical History Clinical Assessments 232
ACE Subject Medical History Clinical Assessments 87
ACE Subject Physical Exam Clinical Assessments 58
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 87
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 2 Clinical Assessments 37
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Toddler Module Clinical Assessments 62
BSRC Intervention History Form Clinical Assessments 157
Child Behavior Checklist (CBCL) 1-5 Clinical Assessments 17
Demographics Clinical Assessments 231
Mullen Scales of Early Learning Clinical Assessments 167
Research Subject Clinical Assessments 231
Sensory Profile Toddler Clinical Assessments 87
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 17
Social Responsiveness Scale (SRS) - Preschool Version Clinical Assessments 17
Vineland-II - Survey Form (2005) Clinical Assessments 162

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
26113807Create StudyRobust estimation of group-wise cortical correspondence with an application to macaque and human neuroimaging studies.Frontiers in neuroscienceLyu I, Kim SH, Seong JK, Yoo SW, Evans A, Shi Y, Sanchez M, Niethammer M, Styner MA2015Not Determined
26089584Create StudyAutomatic Tissue Segmentation of Neonate Brain MR Images with Subject-specific Atlases.Proceedings of SPIE--the International Society for Optical EngineeringCherel M, Budin F, Prastawa M, Gerig G, Lee K, Buss C, Lyall A, Consing KZ, Styner MFebruary 21, 2015Not Determined
26028802Create StudyLOGISMOS-B for Primates: Primate Cortical Surface Reconstruction and Thickness Measurement.Proceedings of SPIE--the International Society for Optical EngineeringOguz I, Styner M, Sanchez M, Shi Y, Sonka M2015Not Determined
25745376Create StudyToward innovative, cost-effective, and systemic solutions to improve outcomes and well-being of military families affected by autism spectrum disorder.The Yale journal of biology and medicineKlin, Ami; Wetherby, Amy M; Woods, Juliann; Saulnier, Celine; Stapel-Wax, Jennifer; Klaiman, Cheryl; Jones, Warren; Rubin, Emily; Scahill, Lawrence; Call, Nathan; Bearss, Karen; Gunter, Chris; Courtemanche, Charles J; Lemieux, Anthony; Cox, James C; Mandell, David S; Van Decar, James P; Miller, Ronald A; Shireman, Cherri LMarch 2015Not Relevant
25726820Create StudyReducing age of autism diagnosis: developmental social neuroscience meets public health challenge.Revista de neurologiaKlin A, Klaiman C, Jones WFebruary 25, 2015Not Determined
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska K, Shic F, Macari S, Campbell DJ, Brian J, Landa R, Hutman T, Nelson CA, Ozonoff S, Tager-Flusberg H, Young GS, Zwaigenbaum L, Cohen IL, Charman T, Messinger DS, Klin A, Johnson S, Bryson SDecember 2014Not Determined
25445180Create StudySocial visual engagement in infants and toddlers with autism: early developmental transitions and a model of pathogenesis.Neuroscience and biobehavioral reviewsKlin, Ami; Shultz, Sarah; Jones, WarrenMarch 2015Not Relevant
24683983Create StudyGroup-wise cortical correspondence via sulcal curve-constrained entropy minimization.Information processing in medical imaging : proceedings of the ... conferenceLyu I, Kim SH, Seong JK, Yoo SW, Evans AC, Shi Y, Sanchez M, Niethammer M, Styner MA2013Not Determined
24327553Create StudyPCLR: phase-constrained low-rank model for compressive diffusion-weighted MRI.Magnetic resonance in medicineGao H, Li L, Zhang K, Zhou W, Hu XNovember 2014Not Determined
24196715Create StudyAttention to eyes is present but in decline in 2-6-month-old infants later diagnosed with autism.NatureJones W, Klin ADecember 19, 2013Not Determined
23603286Create StudyMapping putative hubs in human, chimpanzee and rhesus macaque connectomes via diffusion tractography.NeuroImageLi L, Hu X, Preuss TM, Glasser MF, Damen FW, Qiu Y, Rilling JOctober 15, 2013Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
ADOS info iconApproved
Intervention History info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Physical Exam info iconApproved
Research Subject and Pedigree info iconApproved
Mullen Scales of Early Learning info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Demographics info iconApproved
Goldman-Fristoe Test of Articulation info iconApproved
Sensory Profile info iconApproved
Medical History info iconApproved
Eye Tracking info iconApproved
Early Screening of Autistic Traits Questionnaire (ESAT) info iconApproved
Developmental Profiling of Spoken Language Development info iconApproved
Systematic Observation of Red Flags for ASD in Young Children (SORF) info iconApproved
Communication and Symbolic Behavior Scales (CSBS) info iconApproved
LENA - Frequency of Speech info iconApproved
Measures of Active Engagement and Transactional Support (MAETS) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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