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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

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Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Electrophysiological Response to Executive Control Training in Autism
Susan Faja 
Fifty to 96% of children with ASD demonstrate impaired executive control the ability to manage complex or conflicting information in the service of a goal. Development of appropriate executive control is relevant to public health because these skills are critical for success in school, the workplace, and social relationships. Executive impairments in ASD have been well documented, but have received virtually no intervention research attention. Further, development of neural systems underlying executive control in ASD and their contribution to social function and symptoms remain poorly understood. The proposed project has the following scientific goals: (1) to determine the neural basis of executive control in children with ASD using two well-established electrophysiological measures (K99 period); (2) to test whether individual electrophysiological differences in executive control are meaningfully related to the social function and symptoms of children with ASD (R00 period); and (3) to assess whether brief, focused training in executive control produces significant changes in the brain function and behavior of children with ASD (R00 period). These goals will be addressed using a common set of electrophysiological measures. During the mentored K99 phase, the neural response to executive control tasks by 30 children with ASD will be compared with 30 typically developing children. During the independent phase, 60 children with ASD will be randomly assigned to receive brief executive control training or to a wait list. Individual differences in neural response and their relation to social ability will be assessed in all children prior to intervention.
NDAR
Closed
Shared
$896,997.00
143
190
51
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NIH - Extramural None


K99HD071966-01 Electrophysiological Response to Executive Control Training in Autism 07/01/2012 06/30/2017 190 51 BOSTON CHILDRENS HOSPITAL $896,997.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
332GoNogo - EEG07/08/2015ApprovedEEG
331Child ANT Flanker - EEG07/08/2015ApprovedEEG

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 88
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 86
BRIEF-Parent Clinical Assessments 119
BRIEF-Teacher Clinical Assessments 61
Change Task Clinical Assessments 70
Child Behavior Checklist (CBCL) 6-18 Clinical Assessments 118
Children's Memory Scale (CMS) - Ages 5 to 8 Clinical Assessments 29
Children's Memory Scale (CMS) - Ages 9 to 16 Clinical Assessments 39
Color Reading Interference (Stroop) Clinical Assessments 70
Delay Discounting Task Clinical Assessments 68
EEG Subject Files Imaging 69
Hungry Donkey Task Clinical Assessments 66
Inspection Time Task Clinical Assessments 45
Research Subject Clinical Assessments 131
SRS-2. Adult, Preschool and School Age Clinical Assessments 51
Social Skills Improvement System Parent Scale Clinical Assessments 51
Social Skills Improvement System Teacher Scale Clinical Assessments 23
Vineland-II - Survey Form (2005) Clinical Assessments 131
WASI-2 Clinical Assessments 130

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27825750Create StudyNeural and behavioral suppression of interfering flankers by children with and without autism spectrum disorder.NeuropsychologiaFaja S, Clarkson T, Webb SJDecember 2016Not Determined
26890821Create StudyExecutive function predicts the development of play skills for verbal preschoolers with autism spectrum disorders.Autism research : official journal of the International Society for Autism ResearchFaja S, Dawson G, Sullivan K, Meltzoff AN, Estes A, Bernier RFebruary 18, 2016Not Determined
26886246Create StudyFace perception and learning in autism spectrum disorders.Quarterly journal of experimental psychology (2006)Webb SJ, Neuhaus E, Faja SMarch 16, 2016Not Relevant
26075790Create StudyGenome-wide significant risk associations for mucinous ovarian carcinoma.Nature geneticsOvarian Cancer Association Consortium; Australian Cancer Study; Australian Ovarian Cancer Study GroupAugust 2015Not Relevant
24335116Create StudyReduced delay of gratification and effortful control among young children with autism spectrum disorders.Autism : the international journal of research and practiceFaja, Susan; Dawson, GeraldineJanuary 2015Not Relevant
23893954Create StudyReward-based decision making and electrodermal responding by young children with autism spectrum disorders during a gambling task.Autism research : official journal of the International Society for Autism ResearchFaja S, Murias M, Beauchaine TP, Dawson GDecember 2013Not Determined
23101741Create StudyEarly behavioral intervention is associated with normalized brain activity in young children with autism.Journal of the American Academy of Child and Adolescent PsychiatryDawson G, Jones EJ, Merkle K, Venema K, Lowy R, Faja S, Kamara D, Murias M, Greenson J, Winter J, Smith M, Rogers SJ, Webb SJNovember 2012Not Determined
22796987Create StudyThe responsiveness of biological motion processing areas to selective attention towards goals.NeuroImageHerrington J, Nymberg C, Faja S, Price E, Schultz ROctober 15, 2012Not Determined
6510051Create StudyLearning about school: the development of kindergartners' school scripts.Child developmentFivush ROctober 1984Not Relevant
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Vineland (Parent and Caregiver) info iconApproved
ADI-R info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Wechsler Abbreviated Scale of Intelligence (WASI) info iconApproved
Change Task info iconApproved
Research Subject and Pedigree info iconApproved
Behavior Rating Inventory of Executive Function (BRIEF) info iconApproved
ADOS info iconApproved
EEG info iconApproved
Social Skills Improvement System (SSIS) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Childrens Memory Scale (CMS) info iconApproved
Iowa Gambling Task info iconApproved
Color Reading Interference (Stroop) info iconApproved
Inspection Time Task info iconApproved
Delay Discounting Task info iconApproved
Hungry Donkey Task info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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