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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

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General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gender and Cognitive Profile as Predictors of Functional Outcomes in School-Aged Children
Jennifer Moriuchi 
The vast variability of symptoms and symptom severity in autism spectrum disorders (ASD) has been one of the greatest obstacles for research on its causes and treatment. This project aims to enhance understanding of the phenotypic heterogeneity in the disorder by identifying social learning styles that predict positive outcome within more homogeneous subgroups of children with ASD. A large, heterogeneous sample of school-age children with ASD, developmentally-delayed peers, and typically-developing peers will watch scenes of naturalistic social interaction in everyday settings in an eye-tracking paradigm. Utilizing novel, highly quantitative measures of moment-by-moment social engagement, we will stratify distinct, clinically meaningful subgroups of children with ASD and study in detail how these children view scenes of social interaction in everyday settings. In particular, we will focus on social visual engagement in girls and in children with ASD with more severe intellectual disabilities, two groups generally underrepresented in ASD research. The training support provided by the award for this project will aid my development as a researcher by advancing my analytical and computational skills and will aid my development as a clinician through the broad exposure afforded by the Marcus Autism Center, the largest autism clinical care center in the country. Most importantly though, the results will advance the longer-term goal of developing successful, individualized treatments for the whole spectrum of children with ASD.
NDAR
Closed
Shared
29
0
0
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Autism Science Foundation None



Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
167School-age naturalistic stimuli09/19/2014ApprovedEye Tracking

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 17
Autism Diagnostic Observation Schedule (ADOS) - Module 1 (2007) Clinical Assessments 2
Autism Diagnostic Observation Schedule (ADOS) - Module 2 (2007) Clinical Assessments 4
Autism Diagnostic Observation Schedule (ADOS)- Module 3 (2007) Clinical Assessments 8
DAS-II: Differential Ability Scales 2nd Ed. School Age Clinical Assessments 13
DAS-II:Differential Ability Scales 2nd Ed. Early Years Clinical Assessments 9
Eye Tracking Subject-Experiment Imaging 27
Research Subject Clinical Assessments 26
SRS-2. Adult, Preschool and School Age Clinical Assessments 26
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 16
Vineland-II - Survey Form (2005) Clinical Assessments 24

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
No records found.
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
DAS-II: Differential Ability Scales info iconApproved
Research Subject and Pedigree info iconApproved
ADOS info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
ADI-R info iconApproved
Eye Tracking info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study Name Description Number of Subjects
Collection / Total
Data Use State
Revising the Social Communication Questionnaire scoring procedures for Autism Spectrum Disorder and potential Social Communication Disorder In analyzing data from the National Database for Autism Research, we examine revising the Social Communication Questionnaire (SCQ), a commonly used screening instrument for Autism Spectrum Disorder. A combination of Item Response Theory and Mokken scaling techniques were utilized to achieve this and abbreviated scoring of the SCQ is suggested. The psychometric sensitivity of this abbreviated SCQ was examined via bootstrapped Receiver Operator Characteristic (ROC) curve analyses. Additionally, we examined the sensitivity of the abbreviated and total scaled SCQ as it relates to a potential diagnosis of Social (Pragmatic) Communication Disorder (SCD). As SCD is a new disorder introduced with the fifth edition of the Diagnostic and Statistical Manual (DSM-5), we identified individuals with potential diagnosis of SCD among individuals with ASD via mixture modeling techniques using the same NDAR data. These analyses revealed two classes or clusters of individuals when considering the two core areas of impairment among individuals with ASD: social communication and restricted, repetitive patterns of behavior. 1 / 1021 Secondary Analysis Shared
* Data not on individual level
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