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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
900DTIfMRI04/11/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
898FAST-POMAfMRI04/03/2018
897parvizi_eeg_109EEG03/19/2018
896parvizi_eeg_107EEG03/19/2018
895parvizi_eeg_106EEG03/19/2018
894Dot ProbeEye Tracking03/07/2018
893Startle Habituation and Shock Sensitivity EvaluationEEG03/03/2018
892NPU EEG Task EEG03/03/2018
891Duke ACE ETEye Tracking03/02/2018
888Emotion 1.1 Determining context effects during potential threatfMRI02/26/2018
886RestfMRI02/14/2018
885SARTfMRI02/14/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
877PRV-005-EEGEEG01/22/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked (EyeTracking)Eye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
869cyberballfMRI01/12/2018
868MDD_PilotfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
864parvizi_eeg_118EEG01/12/2018
863parvizi_eeg_117EEG01/12/2018
862parvizi_eeg_116EEG01/12/2018
861parvizi_eeg_115EEG01/12/2018
860parvizi_eeg_114EEG01/12/2018
859parvizi_eeg_113EEG01/12/2018
858PRV-003-EEGEEG01/12/2018
857PRV-004-EEGEEG01/12/2018
856PRV-007-EEGEEG01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
854PRV-002-EEGEEG01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

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Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

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Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Family Outcomes in Autism Spectrum Disorders
Sigan L. Hartley 
It is now estimated that 1 in 88 children in the U.S. are diagnosed with an autism spectrum disorder (ASD).Few disabilities are more stressful on parents than ASD. There is theoretical and empirical evidence to suggest that chronic parenting stress affects marital adjustment. The overarching goal of this project is to examine the within-family associations between the autism symptoms and behavior problems of children with ASDs and marital adjustment as these processes unfold in naturalistic contexts and across 3 years. The specific study aims are: 1) Compare the self-reported and observed marital adjustment of couples of children with ASDs as compared to couples who have children without disabilities. 2) Test the within-family day-to-day temporal effects of child symptoms and behavior problems on couple interactions. 3) Examine the trajectories of global self-reported and observed marital adjustment across 4 waves of data collection spanning 3 years.In total, 175 married couples who have a child with an ASD aged 5 to 12 years will participate in the study.Study variables will be assessed through self-reported and teacher-reported measures and direct observations across 4 waves of data collection spanning 3 years. A matched comparison group of 150 married couples of children without a disability will also participate at Time 1 to understand how the processes in families of children with ASDs differ from normative experiences. Associations between marital adjustment and child symptoms and behavior problems will be examined using both a micro-level scale (14-day daily diary at Time 1), to examine the unfolding of 'real time' day-to-day associations in their natural and spontaneous context, and a macro-level scale (4 waves of data collection spanning 3 years), to examine the longer-term time-order pathways between these variables. Our primary unit of analysis is the couple, with individuals (husbands and wives) nested within couples. Multivariate multilevel modeling will be used to handle the inter-dependence of spouses data collected at multiple time points (Raudenbush & Bryk, 2002).
NDAR
Funding Completed
Shared
$2,124,433.00
665
1360
678
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NIH - Extramural None


R01MH099190-01 Family Outcomes in Autism Spectrum Disorders 06/01/2013 02/28/2018 1360 678 UNIVERSITY OF WISCONSIN-MADISON $2,124,433.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Adaptive Behavior Assessment System, Second Edition Clinical Assessments 337
Demographics Short Form Clinical Assessments 1014
Family Outcomes in Autism Spectrum Disorder Clinical Assessments 1011
Personal Assessment of Intimacy in Relationships Clinical Assessments 323
Research Subject Clinical Assessments 1017

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29097880Create StudyCouple Conflict in Parents of Children with versus without Autism: Self-Reported and Observed Findings.Journal of child and family studiesHartley SL, Papp LM, Mihaila I, Bussanich PM, Goetz G, Hickey EJAugust 2017Relevant
28275928Create StudyDaily Couple Experiences and Parent Affect in Families of Children with Versus Without Autism.Journal of autism and developmental disordersHartley SL, Dawalt LS, Schultz HMMarch 2017Relevant
27899714Create StudyParental sleep quality and behavior problems of children with autism.Autism : the international journal of research and practiceMihaila I, Hartley SLNovember 2016Relevant
27336179Create StudyThe Effect of Daily Challenges in Children With Autism on Parents' Couple Problem-Solving Interactions.Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)Hartley SL, Papp LM, Blumenstock SM, Floyd F, Goetz GLJune 23, 2016Relevant
27218268Create StudySpillover of Marital Interactions and Parenting Stress in Families of Children With Autism Spectrum Disorder.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Hartley SL, Papp LM, Bolt DMay 24, 2016Relevant
25484479Create StudyDivision of Labor in Families of Children and Adolescents with Autism Spectrum Disorder.Family relationsHartley SL, Mihaila I, Otalora-Fadner HS, Bussanich PMDecember 2014Relevant
25433405Create StudySupport needs of fathers and mothers of children and adolescents with autism spectrum disorder.Journal of autism and developmental disordersHartley SL, Schultz HMJune 2015Relevant
24217029Create StudyParental attributions for the behavior problems of children and adolescents with autism spectrum disorders.Journal of developmental and behavioral pediatrics : JDBPHartley SL, Schaidle EM, Burnson CF2013 Nov-DecRelevant
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
29097880Create StudyCouple Conflict in Parents of Children with versus without Autism: Self-Reported and Observed Findings.Journal of child and family studiesHartley SL, Papp LM, Mihaila I, Bussanich PM, Goetz G, Hickey EJAugust 2017
28275928Create StudyDaily Couple Experiences and Parent Affect in Families of Children with Versus Without Autism.Journal of autism and developmental disordersHartley SL, Dawalt LS, Schultz HMMarch 2017
27899714Create StudyParental sleep quality and behavior problems of children with autism.Autism : the international journal of research and practiceMihaila I, Hartley SLNovember 2016
27336179Create StudyThe Effect of Daily Challenges in Children With Autism on Parents' Couple Problem-Solving Interactions.Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)Hartley SL, Papp LM, Blumenstock SM, Floyd F, Goetz GLJune 23, 2016
27218268Create StudySpillover of Marital Interactions and Parenting Stress in Families of Children With Autism Spectrum Disorder.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Hartley SL, Papp LM, Bolt DMay 24, 2016
25484479Create StudyDivision of Labor in Families of Children and Adolescents with Autism Spectrum Disorder.Family relationsHartley SL, Mihaila I, Otalora-Fadner HS, Bussanich PMDecember 2014
25433405Create StudySupport needs of fathers and mothers of children and adolescents with autism spectrum disorder.Journal of autism and developmental disordersHartley SL, Schultz HMJune 2015
24217029Create StudyParental attributions for the behavior problems of children and adolescents with autism spectrum disorders.Journal of developmental and behavioral pediatrics : JDBPHartley SL, Schaidle EM, Burnson CF2013 Nov-Dec
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Adaptive Behavior Assessment System, 2nd edition (ABAS-II) info iconApproved
Research Subject and Pedigree info iconApproved
Medical History info iconApproved
Demographics info iconApproved
Personal Assessment of Intimacy in Relationships (PAIR) info iconApproved
Dyadic Coping Inventory (DCI) info iconApproved
Daily Couple Adaptive Processes Instrument info iconApproved
Scales of Independent Behavior Revised (SIB-R) info iconApproved
Couples Conflict and Problem-Solving Strategies (CCPS) info iconApproved
Broad Autism Phenotype Questionnaire (BAPQ) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Couple Satisfaction Index (CSI) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
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