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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
New Trial
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Verbal/non-verbal asynchrony in adolescents with high-functioning Autism
Ruth B. Grossman 
Adolescents with high-functioning autism (HFA) have significant deficits in non-verbal social communication, which often lead to depression and social withdrawal. These deficits are particularly apparent in their ability to process and produce qualitatively appropriate facial expressions. It has been suggested that a lack of synchrony between verbal and non-verbal speech acts may significantly contribute to this social awkwardness. And yet, very little attention has been paid to the interaction between receptive and expressive non-verbal communication and their integration with verbal language. In the receptive domain, evidence from eyetracking studies increasingly shows that participants with HFA have subtle, qualitative differences in their scan paths for communicative facial expressions. Production of non-verbal communication in this population is still very poorly understood, but preliminary evidence points to expressions that are categorically accurate, but qualitatively awkward and less synchronous with verbal language than those of their typically developing (TD) peers. In a highly innovative approach the proposed project will quantify the qualitative differences of facial expression processing and production by adolescents with HFA. We will use eyetracking and motion-capture methodologies to record objective measures of facial expression production and processing and relate them to the subjective appearance of awkwardness recorded by TD peers. We will specifically aim to determine the contribution of an underlying verbal/non-verbal synchrony deficit in adolescents with HFA to this social communication awkwardness. Eyetracking and motion-capture data will be correlated with behavioral measures and diagnostic severity for each participant. Motion-capture data will also be correlated with judgments of awkwardness by TD observers and will analyze qualitative components for expressive and receptive social communication skills and their synchrony with verbal language. The importance of this work lies in establishing the relationship between specific, quantifiable features of non-verbal communication and the social communication success of each participant with HFA, as measured by symptom severity and by qualitative perceptions of TD coders. We hypothesize that adolescents with HFA have reduced verbal/nonverbal synchrony in receptive and expressive modalities, and that individuals with higher ASD symptom severity will show increased asynchrony in receptive and expressive tasks. In addition to documenting fine-grained deficits, we will also ascertain whether individuals with HFA are able to improve their productions in response to temporal-spatial cueing. This component of our proposed project will ultimately lead to improved social communication intervention by creating more clearly defined intervention targets, such as verbal/nonverbal synchrony.
NDAR
Enrolling
Shared
$1,540,526.00
52
140
126

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NIH - Extramural None


R01DC012774-01 Verbal/non-verbal asynchrony in adolescents with high-functioning Autism 08/01/2013 07/31/2017 140 126 EMERSON COLLEGE $1,540,526.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 10
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 4 Clinical Assessments 4
Autism Spectrum Quotient (AQ) Clinical Assessments 32
Brief Fear of Negative Evaluation, Straightforward Items Clinical Assessments 37
CELF-5 Clinical Assessments 37
Kaufman Brief Intelligence Test, 2nd Edition (KBIT-2) Clinical Assessments 38
Multidimensional Anxiety Scale for Children Parent and Self Clinical Assessments 36
Research Subject Clinical Assessments 16
Screen for Child Anxiety Related Disorders (SCARED), Parent/Child Clinical Assessments 38
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 4
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 36

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
28145411Create StudyNeurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments.Scientific reportsSasson NJ, Faso DJ, Nugent J, Lovell S, Kennedy DP, Grossman RBFebruary 2017Not Determined
28074356Create StudyHow Anxious Do You Think I Am? Relationship Between State and Trait Anxiety in Children With and Without ASD During Social Tasks.Journal of autism and developmental disordersMertens J, Zane ER, Neumeyer K, Grossman RBJanuary 2017Relevant
26705397Create StudyOn Quantifying Facial Expression-Related Atypicality of Children with Autism Spectrum Disorder.Proceedings of the ... IEEE International Conference on Acoustics, Speech, and Signal Processing / sponsored by the Institute of Electrical and Electronics Engineers Signal Processing Society. ICASSP (Conference)Guha T, Yang Z, Ramakrishna A, Grossman RB, Darren H, Lee S, Narayanan SSApril 2015Not Determined
25620208Create Study"Look who's talking!" Gaze Patterns for Implicit and Explicit Audio-Visual Speech Synchrony Detection in Children With High-Functioning Autism.Autism research : official journal of the International Society for Autism ResearchGrossman RB, Steinhart E, Mitchell T, McIlvane WJune 2015Not Determined
25302090Create StudyQUANTIFYING ATYPICALITY IN AFFECTIVE FACIAL EXPRESSIONS OF CHILDREN WITH AUTISM SPECTRUM DISORDERS.Proceedings / IEEE International Conference on Multimedia and Expo. IEEE International Conference on Multimedia and ExpoMetallinou A, Grossman RB, Narayanan S2013Not Determined
25294649Create StudyApplying machine learning to facilitate autism diagnostics: pitfalls and promises.Journal of autism and developmental disordersBone D, Goodwin MS, Black MP, Lee CC, Audhkhasi K, Narayanan SMay 2015Not Relevant
24923894Create StudyJudgments of social awkwardness from brief exposure to children with and without high-functioning autism.Autism : the international journal of research and practiceGrossman RBJuly 2015Not Determined

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
28074356Create StudyHow Anxious Do You Think I Am? Relationship Between State and Trait Anxiety in Children With and Without ASD During Social Tasks.Journal of autism and developmental disordersMertens J, Zane ER, Neumeyer K, Grossman RBJanuary 2017

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
ADOS info iconApproved
Clinical Evaluation of Language Fundamentals (CELF) info iconApproved
Kaufman Brief Intelligence Test info iconApproved
Research Subject and Pedigree info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Multidimensional Anxiety Scale for Children (MASC) info iconApproved
Screen for Childhood Anxiety Related Emotional Disorders (SCARED) info iconApproved
Autistic Spectrum Quotient info iconApproved
Brief Fear of Negative Evaluation, Straightforward Items info iconApproved
Physical Exam info iconApproved
Eye Tracking info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.