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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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General

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Funding Source

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Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Treatment of anxiety in autism spectrum disorder
Jeffrey Wood, Eric Storch and Philip Kendall 
Comorbid anxiety disorders affect 40 to 50% of children with ASD, causing substantial distress and impairmentover and above that caused by ASD alone. High anxiety is associated with increased severity of ASDsymptoms and social maladjustment in affected youth. Further, parents of children with ASD consider anxietyrelatedproblems to be among the top two challenges facing their children. Although standard practicecognitive-behavioral therapy (CBT) has been established as an efficacious and safe treatment for anxietydisorders among typically developing youth, its utility in comorbid cases with ASD remains unknown. To date, no studies have experimentally compared standard practice CBT to a cognitive-behavioral intervention that has been personalized for children with a comorbid presentation of anxiety and ASD.] This gap in the literature is ofparticular concern because there are no empirically-supported treatment options for youth with ASD and comorbid anxiety, and existing pharmacological interventions may have some disadvantages (e.g., limited efficacy in this population, side effects, and potential for drug x drug interactions). Accordingly, we are proposing a randomized controlled trial to be conducted at three treatment sites to evaluate the efficacy ofpersonalized CBT for anxiety in ASD (Behavioral Intervention for Anxiety in Children with Autism: BIACA) relative to standard practice CBT for anxiety (Coping Cat program). Over the last five years, the proposed BIACA intervention has been adapted and tailored to the characteristics and needs of high-functioning children with ASD; the Coping Cat program reflects the community standard that has been empirically supported in multiple NIH-funded trials. In response to the NIH Roadmap Initiative, BIACA employs a modular treatmentapproach, allowing the intervention to be personalized to each youngster's unique needs. Thus, the proposedresearch will: (1) examine the efficacy of BIACA relative to Coping Cat, which represents standard practice treatment, (2) evaluate the maintenance of treatment gains, (3) examine the impact of personalizedintervention on functional outcomes such as social responsiveness, loneliness, and friendship quality, (4) test autism severity as a moderator of treatment outcome, and (5) explore other moderators and mediators of treatment outcome. A total of 180 youth (ages 8-13 years) with ASD and co-occurring anxiety will be randomly assigned to one of the two treatment conditions. The three recruitment sites for this study are UCLA, theUniversity of South Florida (USF), and Temple University. USF will provide data management services. Considering the rising number of children diagnosed with ASD together with the frequency and severity of comorbid anxiety, the proposed work is tailored to the unique needs of youth with ASD and will provide a timely contribution to public health efforts.
NDAR
Enrolling
Shared
$1,697,334.00
151
120
74
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NIH - Extramural None


R01HD080098-01 1/3 Treatment of Anxiety in Autism Spectrum Disorder 12/16/2013 11/30/2016 60 35 UNIVERSITY OF CALIFORNIA LOS ANGELES $663,224.00
R01HD080096-01 2/3 Treatment of Anxiety in Autism Spectrum Disorder 01/01/2014 12/31/2016 60 39 UNIVERSITY OF SOUTH FLORIDA $470,657.00
R01HD080097-01 3/3 Treatment of anxiety in autism spectrum disorder 02/20/2014 01/31/2017 Not Reported Not Reported TEMPLE UNIV OF THE COMMONWEALTH $563,453.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Expectancy Rating Questionnaire (ERQ) Clinical Assessments 112
Loneliness Rating Scale (LRS) Clinical Assessments 110
Research Subject Clinical Assessments 119
Service Assess for Child Adolescents Service Use Scale (SACA) Clinical Assessments 117
Wechsler Intelligence Scale for Children - IV [part 2] Clinical Assessments 111

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
28013054Create StudyThe role of day-to-day emotions, sleep, and social interactions in pediatric anxiety treatment.Behaviour research and therapyWallace ML, Mcmakin DL, Tan PZ, Rosen D, Forbes EE, Ladouceur CD, Ryan ND, Siegle GJ, Dahl RE, Kendall PC, Mannarino A, Silk JSMarch 2017Not Relevant
26970877Create StudyParental Attitudes, Beliefs, and Understanding of Anxiety (PABUA): Development and psychometric properties of a measure.Journal of anxiety disordersWolk CB, Caporino NE, Mcquarrie S, Settipani CA, Podell JL, Crawley S, Beidas RS, Kendall PCApril 2016Not Relevant
26548429Create StudyAnxiety in youth with autism spectrum disorders: implications for treatment.Expert review of neurotherapeuticsJohnco C, Storch EA2015Not Relevant
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Expectancy Rating Questionnaire (ERQ) info iconApproved
Services Assessment for Children and Adolescents (SACA) info iconApproved
Research Subject and Pedigree info iconApproved
Loneliness Rating Scale (LRS) info iconApproved
Wechsler Intelligence Scale for Children info iconApproved
Clinical Global Impression (CGI) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Pediatric Anxiety Rating Scale (PARS) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
ADOS info iconApproved
Anxiety Disorders Interview Schedule info iconApproved
Consumer Satisfaction Questionnaire info iconApproved
Multidimensional Anxiety Scale for Children (MASC) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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