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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a way to query and access data for which you may be interested.  There are multiple places to go query and Add to Filter Cart (Sometimes called Download).  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you add subjects, sometimes it may take a few minutes to populate.  You can continue to do other things during this time. 

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data available for the subjects selected will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be available.  However, if you want to see all of the clinical and phenotype, then select, "Find All Subject Data" to see all the data avaialble for those subjects.  

when a secord or third filter is applied, an AND condition is used to determine the subjects that are exist in all filters.  If the subject does not appear in any filter, that subjects data will be excluded from your filter cart. Given the sparcity of data in the NDA, it is possible for no subjects to appear across filters.  If that happens, clear your filter cart, and start over.  

The NDA is looking to enhance query/filtering.  Until additional tools become available, it is best to package more data than you need and then package and download the data and use other tools to further restrict and analyze the data.  If you have any questions on data access, are interested in using avaialble web services or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Data Structures with shared data
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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
955Food Choice TaskfMRI06/21/2018
953Shallow EpisodicfMRI06/20/2018
952Semantic EncodingfMRI06/20/2018
951Resting StatefMRI06/20/2018
949Resting StatefMRI06/18/2018
943Emotional Face TaskfMRI06/13/2018
941Meridians localizerfMRI06/07/2018
940V1 localizer movingDotsfMRI06/07/2018
938MT localizer dots movingDotsfMRI06/07/2018
937MT localizer gratings movingDotsfMRI06/07/2018
936V1 localizer peripheryfMRI06/07/2018
935Contrast peripheryfMRI06/07/2018
934MT localizer peripheryfMRI06/07/2018
933Pilot01: Posner Cueing with st-tACSEye Tracking06/06/2018
932Social- Theory of Mind Localizer TaskfMRI06/01/2018
931Faces TaskfMRI05/31/2018
929Moral RatingfMRI05/30/2018
928Pain Detection fMRI05/30/2018
927Reward TaskfMRI05/30/2018
926Go no Go TaskfMRI05/30/2018
924EARLI Placenta WGBSOmics05/24/2018
923Anxiety-CBT fMRI (pre-post) - Version 4 BlockfMRI05/15/2018
922Anxiety-CBT fMRI (pre-post) - Version 3 BlockfMRI05/15/2018
921Anxiety-CBT fMRI (pre-post) - Version 2 BlockfMRI05/15/2018
920Anxiety-CBT fMRI (pre-post) - Version 1 BlockfMRI05/15/2018
919Neural overlap in item representations across episodes impairs context memoryfMRI05/11/2018
918ReferenceTissue: U01MH106892_Brain_Amplicon_SeqOmics05/08/2018
914PFC analysis in bloodOmics04/27/2018
913Task and emotional content driven visual competitionfMRI04/27/2018
912Task and emotional content driven visual competitionEEG04/23/2018
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
Collection - Add Experiment
Add Supporting Documentation
Select File

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.






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Data Expected Item Original Sharing Date New Sharing Date

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Treatment of anxiety in autism spectrum disorder
Jeffrey Wood, Eric Storch and Philip Kendall 
Comorbid anxiety disorders affect 40 to 50% of children with ASD, causing substantial distress and impairmentover and above that caused by ASD alone. High anxiety is associated with increased severity of ASDsymptoms and social maladjustment in affected youth. Further, parents of children with ASD consider anxietyrelatedproblems to be among the top two challenges facing their children. Although standard practicecognitive-behavioral therapy (CBT) has been established as an efficacious and safe treatment for anxietydisorders among typically developing youth, its utility in comorbid cases with ASD remains unknown. To date, no studies have experimentally compared standard practice CBT to a cognitive-behavioral intervention that has been personalized for children with a comorbid presentation of anxiety and ASD.] This gap in the literature is ofparticular concern because there are no empirically-supported treatment options for youth with ASD and comorbid anxiety, and existing pharmacological interventions may have some disadvantages (e.g., limited efficacy in this population, side effects, and potential for drug x drug interactions). Accordingly, we are proposing a randomized controlled trial to be conducted at three treatment sites to evaluate the efficacy ofpersonalized CBT for anxiety in ASD (Behavioral Intervention for Anxiety in Children with Autism: BIACA) relative to standard practice CBT for anxiety (Coping Cat program). Over the last five years, the proposed BIACA intervention has been adapted and tailored to the characteristics and needs of high-functioning children with ASD; the Coping Cat program reflects the community standard that has been empirically supported in multiple NIH-funded trials. In response to the NIH Roadmap Initiative, BIACA employs a modular treatmentapproach, allowing the intervention to be personalized to each youngster's unique needs. Thus, the proposedresearch will: (1) examine the efficacy of BIACA relative to Coping Cat, which represents standard practice treatment, (2) evaluate the maintenance of treatment gains, (3) examine the impact of personalizedintervention on functional outcomes such as social responsiveness, loneliness, and friendship quality, (4) test autism severity as a moderator of treatment outcome, and (5) explore other moderators and mediators of treatment outcome. A total of 180 youth (ages 8-13 years) with ASD and co-occurring anxiety will be randomly assigned to one of the two treatment conditions. The three recruitment sites for this study are UCLA, theUniversity of South Florida (USF), and Temple University. USF will provide data management services. Considering the rising number of children diagnosed with ASD together with the frequency and severity of comorbid anxiety, the proposed work is tailored to the unique needs of youth with ASD and will provide a timely contribution to public health efforts.
Funding Completed
Loading Chart...
NIH - Extramural None

R01HD080098-01 1/3 Treatment of Anxiety in Autism Spectrum Disorder 12/16/2013 11/30/2018 120 35 UNIVERSITY OF CALIFORNIA LOS ANGELES $663,224.00
R01HD080096-01 2/3 Treatment of Anxiety in Autism Spectrum Disorder 01/01/2014 12/31/2018 120 39 UNIVERSITY OF SOUTH FLORIDA $470,657.00
R01HD080097-01 3/3 Treatment of anxiety in autism spectrum disorder 02/20/2014 01/31/2018 Not Reported Not Reported TEMPLE UNIV OF THE COMMONWEALTH $563,453.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Consumer Satisfaction Questionnaire Clinical Assessments 125
Expectancy Rating Questionnaire (ERQ) Clinical Assessments 145
Loneliness Rating Scale (LRS) Clinical Assessments 148
Research Subject Clinical Assessments 151
Services Assessment for Children and Adolescents (SACA) Clinical Assessments 151
Wechsler Intelligence Scale for Children - IV [part 2] Clinical Assessments 151

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29568212Create StudyEffectiveness of Cognitive Behavioral Therapy for Individuals with Autism Spectrum Disorders and Comorbid Obsessive-Compulsive Disorder: A Review of the Research.Journal of developmental and physical disabilitiesKose LK, Fox L, Storch EAFebruary 2018Not Determined
29379397Create StudyComorbid autism spectrum disorder and anxiety disorders: a brief review.Future neurologyZaboski BA, Storch EAFebruary 2018Not Determined
28841335Create StudyFuture Directions for the Examination of Mediators of Treatment Outcomes in Youth.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Carper MM, Makover HB, Kendall PC2018 Mar-AprNot Determined
28747814Create StudyThe Treatment of Anxiety in Autism Spectrum Disorder (TAASD) Study: Rationale, Design and Methods.Journal of child and family studiesKerns CM, Wood JJ, Kendall PC, Renno P, Crawford EA, Mercado RJ, Fujii C, Collier A, Hoff A, Kagan ER, Small BJ, Lewin AB, Storch EAJune 2016Not Determined
28013054Create StudyThe role of day-to-day emotions, sleep, and social interactions in pediatric anxiety treatment.Behaviour research and therapyWallace ML, Mcmakin DL, Tan PZ, Rosen D, Forbes EE, Ladouceur CD, Ryan ND, Siegle GJ, Dahl RE, Kendall PC, Mannarino A, Silk JSMarch 2017Not Relevant
27925775Create StudyAnxiety Disorders Interview Schedule-Autism Addendum: Reliability and Validity in Children With Autism Spectrum Disorder.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Kerns CM, Renno P, Kendall PC, Wood JJ, Storch EA2017 Jan-FebNot Determined
26970877Create StudyParental Attitudes, Beliefs, and Understanding of Anxiety (PABUA): Development and psychometric properties of a measure.Journal of anxiety disordersWolk CB, Caporino NE, Mcquarrie S, Settipani CA, Podell JL, Crawley S, Beidas RS, Kendall PCApril 2016Not Relevant
26548429Create StudyAnxiety in youth with autism spectrum disorders: implications for treatment.Expert review of neurotherapeuticsJohnco C, Storch EA2015Not Relevant

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Customer Satisfaction Questionnaire info iconApproved
Wechsler Intelligence Scale for Children info iconApproved
Research Subject and Pedigree info iconApproved
Services Assessment for Children and Adolescents (SACA) info iconApproved
Expectancy Rating Questionnaire (ERQ) info iconApproved
Loneliness Rating Scale (LRS) info iconApproved
ADOS info iconApproved
Pediatric Anxiety Rating Scale (PARS) info iconApproved
Consumer Satisfaction Questionnaire info iconApproved
Multidimensional Anxiety Scale for Children (MASC) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Anxiety Disorders Interview Schedule info iconApproved
Clinical Global Impression (CGI) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
No records found.