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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
New Trial
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Gaze Modification Strategies for Toddlers with ASD
Frederick Shic 
Recent eye tracking studies have shown that 20 month old toddlers with autism spectrum disorders (ASD), as compared to typically developing (TD) and developmentally delayed(DD) toddlers, attend less to the shared activities of others1 as well as to faces trying to engage them using direct eye contact and childdirectedspeech2 (i.e. bids for dyadic engagement). Since attending to others, and especially their actions, is critically linked to both social skill development and observational learning, teaching toddlers and children with ASD normative strategies for viewing others and their activities may provide new opportunities for them to learn about their social world. This proposal initiates a highly novel line of research which uses adaptive eye tracking technology and nonadaptive perceptually augmented cues in order to help 20montholdtoddlers allocate their attention to people and their actions in a more typical fashion. The project will be conducted in two phases. In the first phase, normative gaze patterns will be collected from 1824month old typically developing (TD) toddlers (N=50) watching videos of actresses engaged in everyday activities, with an emphasis on scenarios incorporating bids for dyadic engagement and shared activities. In the second phase, 20montholdtoddlerswith a preliminary diagnosis of ASD will be shown videos in the following 3 conditions: (1) a nonadaptive cue condition (N=16), where perceptual enhancement will be employed at selected scene locations (e.g. increasing contrast or emphasizing motion) in order to maintain the viewers attention towards normative locations of scanning (2) an adaptive cue condition (N=16), where, as viewers deviate from the normative gaze pattern, the scene automatically redirects attention back towards the normative pattern by darkening or deemphasizing atypical locations on the scene and (3) a control condition (N=16), where toddlers will view the scenes without manipulation, as is shown to TD participants in the first phase. Manipulated blocks will be preceded and followed by dyadic bid scenes and activity scenes which will establish both baseline scanning patterns and the effects of gaze manipulation. Behavioral assessments will be employed before and after the eye tracking sessions in order to gauge the generalizability of any changes to visual scanning strategies. If successful, this study may point towards new methods for training attention towards social information in toddlers with ASD, and may also lead to new eye tracking paradigms that may be more sensitive to atypical patterns of attention.
NDAR
Enrollment Completed
Shared
$457,875.00
81
0
0

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No Data Shared

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NIH - Extramural None


R21MH102572-01 Gaze Modification Strategies for Toddlers with ASD 02/13/2014 01/31/2016 Not Reported Not Reported YALE UNIVERSITY $457,875.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
577Gaze Modification Strategies01/06/2017ApprovedEye Tracking

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Observation Schedule (ADOS) - Module 1 (2007) Clinical Assessments 13
Autism Diagnostic Observation Schedule (ADOS) Toddler Clinical Assessments 19
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 13
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Toddler Module Clinical Assessments 20
Medical History Clinical Assessments 46
Mullen Scales of Early Learning Clinical Assessments 58
NIMH Medical History Questionnaire Clinical Assessments 36
Research Subject Clinical Assessments 62
Vineland-II - Survey Form (2005) Clinical Assessments 33

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27015716Create StudyEye Tracking as a Behavioral Biomarker for Psychiatric Conditions: The Road Ahead.Journal of the American Academy of Child and Adolescent PsychiatryShic FApril 2016Not Relevant

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Eye Tracking info iconApproved
Medical History info iconApproved
Mullen Scales of Early Learning info iconApproved
ADOS info iconApproved
Research Subject and Pedigree info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.