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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
900DTIfMRI04/11/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
898FAST-POMAfMRI04/03/2018
897parvizi_eeg_109EEG03/19/2018
896parvizi_eeg_107EEG03/19/2018
895parvizi_eeg_106EEG03/19/2018
894Dot ProbeEye Tracking03/07/2018
893Startle Habituation and Shock Sensitivity EvaluationEEG03/03/2018
892NPU EEG Task EEG03/03/2018
891Duke ACE ETEye Tracking03/02/2018
888Emotion 1.1 Determining context effects during potential threatfMRI02/26/2018
886RestfMRI02/14/2018
885SARTfMRI02/14/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
877PRV-005-EEGEEG01/22/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked (EyeTracking)Eye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
869cyberballfMRI01/12/2018
868MDD_PilotfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
864parvizi_eeg_118EEG01/12/2018
863parvizi_eeg_117EEG01/12/2018
862parvizi_eeg_116EEG01/12/2018
861parvizi_eeg_115EEG01/12/2018
860parvizi_eeg_114EEG01/12/2018
859parvizi_eeg_113EEG01/12/2018
858PRV-003-EEGEEG01/12/2018
857PRV-004-EEGEEG01/12/2018
856PRV-007-EEGEEG01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
854PRV-002-EEGEEG01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neural Phenotypes of Females with Autism Spectrum Disorder
Christine Wu Nordahl 
Autism spectrum disorder (ASD) affects 1 in 88 children in the United States, but the disorder is much more common in boys than in girls. The prevalence of ASD in boys is 5 times higher than in girls, with a rate of 1 in 54 for boys and 1 in 252 for girls. Although this disparate sex ratio is among the most highly replicated findings in studies of ASD, sex differences in ASD remain poorly understood. The neuropathology of ASD in females is understudied because ASD samples recruited for research studies typically reflect the strong male bias of the disorder. The goal of this study is to evaluate a large, sex-balanced cohort of preschool-aged children with ASD in order to elucidate the neural phenotypes of females with ASD and to identify sex-differences in the neuropathology of ASD. Children will be enrolled at the time of diagnosis (2-3 years of age) and followed longitudinally for two years. Imaging will be carried out at study enrollment and then at two additional annual time points and behavioral testing will be conducted twice, in conjunction with the first and third MRI time points.Imaging will include structural, diffusion-weighted and resting state functional connectivity in order to accomplish the following aims: 1) to evaluate sex differences in the neural systems that underlie core deficits in ASD 2) to investigate sex differences in brain growth trajectories in these neural systems and 3) to identify associations between distinct neural phenotypic subgroups and etiologic factors or behavioral outcomes.A comprehensive understanding of the female phenotype of ASD is a pressing and timely topic, as indicated by national efforts to direct research towards this topic. This program of research responds to the Interagency Autism Coordinating Committee (IACC) strategic plan to evaluate females with ASD as well as the mission of the NIH Office of Research on Women's Health to strengthen and enhance research related to diseases,disorders and conditions that affect females.
NDAR
Enrolling
Shared
$3,418,816.00
53
240
90
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NIH - Extramural None


R01MH104438-01 Neural Phenotypes of Females with Autism Spectrum Disorder 07/10/2014 04/30/2019 240 90 UNIVERSITY OF CALIFORNIA AT DAVIS $3,418,816.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 36
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 30
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 2 Clinical Assessments 16
CHARGE Medical History Clinical Assessments 44
CHARGE Physical Exam Clinical Assessments 48
Child Behavior Checklist (CBCL) 1-5 Clinical Assessments 50
Child's Sleep Habits Questionnaire (CSHQ) Clinical Assessments 46
Children's Behavior Questionnaire Parent Clinical Assessments 49
Children's Behavior Questionnaire Short Form Clinical Assessments 24
Demographics Clinical Assessments 49
Early Development Questionnaire Clinical Assessments 50
Expressive One-Word Picture Vocabulary Test (2000) Clinical Assessments 42
Mullen Scales of Early Learning Clinical Assessments 50
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 38
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 46
Research Subject Clinical Assessments 49
Sensory Profile Short 2 Clinical Assessments 47
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 45
Social Responsiveness Scale (SRS) Clinical Assessments 42
Social Responsiveness Scale (SRS) - Preschool Version Clinical Assessments 47
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 47

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29276529Create StudyNeurobiological Bases of Reading Disorder Part II: The Importance of Developmental Considerations in Typical and Atypical Reading.Language and linguistics compassBlack JM, Xia Z, Hoeft FOctober 2017Not Determined
28924621Create StudyAn altered scaffold for information processing: Cognitive control development in adolescents with autism.Biological psychiatry. Cognitive neuroscience and neuroimagingSolomon M, Hogeveen J, Libero L, Nordahl CSeptember 2017Not Determined
28785303Create StudyNeurobiological bases of reading disorder Part I: Etiological investigations.Language and linguistics compassXia Z, Hancock R, Hoeft FApril 2017Not Relevant
28439565Create StudyShared temporoparietal dysfunction in dyslexia and typical readers with discrepantly high IQ.Trends in neuroscience and educationHancock R, Gabrieli JDE, Hoeft FDecember 2016Not Determined
28239961Create StudyIn pursuit of neurophenotypes: The consequences of having autism and a big brain.Autism research : official journal of the International Society for Autism ResearchAmaral DG, Li D, Libero L, Solomon M, Van De Water J, Mastergeorge A, Naigles L, Rogers S, Wu Nordahl CMay 2017Not Determined
27747263Create StudySocio-Emotional and Cognitive Resilience in Children with Reading Disabilities.Current opinion in behavioral sciencesHaft SL, Myers CA, Hoeft FAugust 2016Not Relevant
27623194Create StudyIntergenerational Neuroimaging of Human Brain Circuitry.Trends in neurosciencesHo TC, Sanders SJ, Gotlib IH, Hoeft FOctober 2016Not Relevant
27458603Create StudyIntegrating MRI brain imaging studies of pre-reading children with current theories of developmental dyslexia: A review and quantitative meta-analysis.Current opinion in behavioral sciencesVandermosten M, Hoeft F, Norton ESAugust 2016Not Relevant
27273931Create StudyPersistence of megalencephaly in a subgroup of young boys with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchLibero LE, Nordahl CW, Li DD, Ferrer E, Rogers SJ, Amaral DGNovember 2016Not Determined
27217105Create StudyThe matter of motivation: Striatal resting-state connectivity is dissociable between grit and growth mindset.Social cognitive and affective neuroscienceMyers CA, Wang C, Black JM, Bugescu N, Hoeft FOctober 2016Not Determined
27158271Create StudyMethods for acquiring MRI data in children with autism spectrum disorder and intellectual impairment without the use of sedation.Journal of neurodevelopmental disordersNordahl CW, Mello M, Shen AM, Shen MD, Vismara LA, Li D, Harrington K, Tanase C, Goodlin-Jones B, Rogers S, Abbeduto L, Amaral DG2016Not Determined
26818513Create StudyFemale-Specific Intergenerational Transmission Patterns of the Human Corticolimbic Circuitry.The Journal of neuroscience : the official journal of the Society for NeuroscienceYamagata B, Murayama K, Black JM, Hancock R, Mimura M, Yang TT, Reiss AL, Hoeft FJanuary 27, 2016Not Determined
26679527Create StudyNeuroanatomical anomalies of dyslexia: Disambiguating the effects of disorder, performance, and maturation.NeuropsychologiaXia Z, Hoeft F, Zhang L, Shu HJanuary 29, 2016Not Determined
26279309Create StudyAssessing hippocampal development and language in early childhood: Evidence from a new application of the Automatic Segmentation Adapter Tool.Human brain mappingLee JK, Nordahl CW, Amaral DG, Lee A, Solomon M, Ghetti SNovember 2015Not Determined
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Research Subject and Pedigree info iconApproved
ADI-R info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
Childs Sleep Habits Questionnaire (CSHQ) info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
ADOS info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Childrens Behavior Questionnaire (CBQ) info iconApproved
Early Development Questionnaire info iconApproved
Mullen Scales of Early Learning info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Sensory Profile info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Expressive One-Word Picture Vocabulary Test (2000) info iconApproved
Demographics info iconApproved
Physical Exam info iconApproved
Medical History info iconApproved
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
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