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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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General

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For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Supported Employment, Cognitive Enhancement, Social Skills Program for ASD Adult
Mary J. Baker 
The increasing population of adults with ASD is described as a challenging public health issue. Longitudinal studies of intellectually able adults with autism have shown consistent and persistent deficits across cognitive, social, and vocational domains, indicating a significant need for effective treatments for these functional disabilities. The cognitive and social skill deficits that are core features of the autism diagnosis have been identified as major challenges to employment success for adults with ASD. As the neurobiological basis of autism is further investigated, new interventions are focusing on remediating the core deficits specific to social and cognitive dysfunction in ASD. Impairments in information processing and executive functioning are considerable in individuals with ASD as in other conditions (i.e. schizophrenia), but are often ignored targets of treatment. Social cognition and social skills are also severely impacted in ASD and strongly associated with functional outcomes. This study builds on the innovative, bi-directional approach to translational research that attends to community needs at the onset of treatment development and utilizes community-based participatory research methods. The primary goal of this application is to develop a novel, integrated community-based intervention, Supported Employment, Cognitive Enhancement, Social Skills (SECESS) which will augment an existing community supported employment practice with an adapted evidence-based cognitive compensatory training (CCT) for schizophrenia and traumatic brain injury and a commonly used social skills training (Social Thinking at Work) to help adults with ASD improve the necessary "soft skills" to find and keep competitive work. The proposed SECESS model and this research application were prepared as a joint effort of our research-community ACHIEVE (Active Collaborative Hub for Individuals with ASD to Enhance Vocation and Education) group. The aims are to 1) Standardize the SECESS program by developing an employment specialist intervention manual and corresponding program workbook for consumers with ASD, and develop a corresponding training protocol that can be implemented within the community vocational rehabilitation system to provide initial training and ongoing coaching for employment specialists to reach and sustain intervention fidelity. 2) Conduct a pilot RCT study (n=40) to examine the feasibility, acceptability, and implementation procedures (recruitment, randomization, retention & training strategies) of SECESS and to obtain estimates of effects of outcomes which include cognitive skills, social skills, work, functioning and quality of life to support a future large-scale effectiveness trial. Exploratory analyses will be conducted to examine associations, such as sequential relationships, between variables (potential mediator effects) as well as ASD characteristics and outcomes (potential moderator effects) to further understand the potential application of the model to a heterogeneous population of ASD.
NDAR
Enrolling
Shared
$795,431.00
39
72
48
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NIH - Extramural None


R34MH104289-01 Supported Employment, Cognitive Enhancement, Social Skills Program for ASD Adult 09/01/2014 07/31/2017 72 48 RADY CHILDRENS HOSPITAL - SAN DIEGO $795,431.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Demographics Short Form Clinical Assessments 14

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Delis-Kaplan Executive Function System (D-KEFS) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Wechsler Abbreviated Scale of Intelligence (WASI) info iconApproved
Demographics info iconApproved
Adult Self Report info iconApproved
Wechsler Adult Intelligence Scale info iconApproved
Behavior Rating Inventory of Executive Function (BRIEF) info iconApproved
Research Subject and Pedigree info iconApproved
Quality of Life Enjoyment and Satisfaction Questionnaire info iconApproved
ADOS info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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