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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
911Resting StatefMRI04/20/2018
910Modified Monetary Incentive Delay fMRI04/20/2018
908Resting State Pre-Stress Visit 1fMRI04/20/2018
907Montreal Imaging Stress Task Visit 1fMRI04/18/2018
9062-back Post-Stress Visit 1fMRI04/18/2018
9051-back Post-Stress Visit 1fMRI04/18/2018
9040-back Post-Stress Visit 1fMRI04/18/2018
9032-back Pre-Stress Visit 1fMRI04/18/2018
9021-back Pre-Stress Visit 1fMRI04/18/2018
9010-back Pre-Stress Visit 1fMRI04/18/2018
900DTIfMRI04/11/2018
899Investigating a Neurobehavioral Mechanism of Paranoia - Resting State ScansfMRI04/06/2018
898FAST-POMAfMRI04/03/2018
897parvizi_eeg_109EEG03/19/2018
896parvizi_eeg_107EEG03/19/2018
895parvizi_eeg_106EEG03/19/2018
894Dot ProbeEye Tracking03/07/2018
893Startle Habituation and Shock Sensitivity EvaluationEEG03/03/2018
892NPU EEG Task EEG03/03/2018
891Duke ACE ETEye Tracking03/02/2018
888Emotion 1.1 Determining context effects during potential threatfMRI02/26/2018
886RestfMRI02/14/2018
885SARTfMRI02/14/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
877PRV-005-EEGEEG01/22/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked (EyeTracking)Eye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
869cyberballfMRI01/12/2018
868MDD_PilotfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
864parvizi_eeg_118EEG01/12/2018
863parvizi_eeg_117EEG01/12/2018
862parvizi_eeg_116EEG01/12/2018
861parvizi_eeg_115EEG01/12/2018
860parvizi_eeg_114EEG01/12/2018
859parvizi_eeg_113EEG01/12/2018
858PRV-003-EEGEEG01/12/2018
857PRV-004-EEGEEG01/12/2018
856PRV-007-EEGEEG01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
854PRV-002-EEGEEG01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Services to enhance social functioning in adults with autism spectrum disorder
Edward S. Brodkin 
This application is submitted in response to RFA-MH-14-102 (Pilot Studies of Services Strategies for Adults with ASD), and seeks support to develop and test a service strategy to enhance social functioning in adults with autism spectrum disorder (ASD). Social cognition and social interaction difficulties, the hallmark deficits of ASD, usually persist into adulthood, markedly impairing the ability of individuals to function in family, educational, work, and community settings, and resulting in a host of negative outcomes. Little work has been done in developing service strategies to enhance social functioning in autistic adults beyond their early twenties. We propose to address these problems by developing a novel, integrated, three-part intervention strategy to enhance social functioning in adults with ASD that includes the following components: 1) a component to develop motivation and capacity to participate in social cognition/social skills training, which will be adapted from evidence-based programs used in community medical settings (the Pathways program) and in children with ASD (schedules); 2) a component to develop social cognition and social skills in a protected setting based on an evidence-based social cognition training program and a video modeling program; and 3) a component to help participants generalize these skills in the context of community-based, philanthropic volunteer work team, which builds on the literature on the beneficial effects of volunteer work for socially isolated individuals. Specific Aim 1: To adapt and integrate existing interventions to develop a novel, integrated, three-part service and intervention strategy to enhance social functioning in adults with ASD. Specific Aim 2: To pilot the three-part service strategy in order to assess feasibility, acceptability, and preliminary effect sizes in preparation for a larger trial. Specific Aim 3: To refine the three-part intervention based on the results from completion of Specific Aim 2 and user input. The proposed study will build an integrated service strategy that spans from screening and diagnosis of adults with ASD in mental health systems, to development of motivation and capacity to participate in an intervention, to social cognition and skill training, to generalization of this new knowledge and skill to useful work and functioning in the community. This project will generate the methods and feasibility of this strategy, and sufficient preliminary data to apply for an R01 to test the strategy in a randomized, controlled trial. The development and testing of this integrated intervention will fill a critically important need for services to enhance social functioning and well-being in adults with ASD.
NDAR
Funding Completed
Shared
$739,418.00
33
60
33
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NIH - Extramural None


R34MH104407-01 Services to enhance social functioning in adults with autism spectrum disorder 08/18/2014 07/31/2017 60 33 UNIVERSITY OF PENNSYLVANIA $739,418.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Age Differentiation Test Clinical Assessments 33
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 4 Clinical Assessments 33
Broad Autism Phenotype Questionnaire (BAPQ) Clinical Assessments 33
Conte Social Interest Questionaire Clinical Assessments 33
Contextual Assessment of Social Skills (CASS) Clinical Assessments 33
Liebowitz Social Anxiety Scale (LSAS) Clinical Assessments 33
Measured Emotion Differentiation Test Clinical Assessments 33
Motivation and Pleasure Scale-Self-Report Clinical Assessments 33
Penn Emotion Recognition Task Clinical Assessments 33
Psychological Well-Being Questionnaire Clinical Assessments 33
Research Subject Clinical Assessments 33
SRS-2. Adult, Preschool and School Age Clinical Assessments 33
Schizotypal Personality Questionnaire Clinical Assessments 33
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 29
Social Network Index Clinical Assessments 33
Social Responsiveness Scale (SRS) - Adult/Self Version Clinical Assessments 24
WASI-2 Clinical Assessments 33
Wide Range Achievement Test 4 (WRAT4) Clinical Assessments 29

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
29341497Create StudyDefining behavioral components of social functioning in adults with autism spectrum disorder as targets for treatment.Autism research : official journal of the International Society for Autism ResearchPallathra AA, Calkins ME, Parish-Morris J, Maddox BB, Perez LS, Miller J, Gur RC, Mandell DS, Schultz RT, Brodkin ESMarch 2018Not Determined
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Quality of Well-Being Scale Self-Administered (QWB-SA) info iconApproved
Conte Social Interest Questionnaire info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Broad Autism Phenotype Questionnaire (BAPQ) info iconApproved
ADOS info iconApproved
Research Subject and Pedigree info iconApproved
Wide Range Achievement Test info iconApproved
Schizotypal Personality Questionnaire info iconApproved
Penn Emotion Recognition Task-40 info iconApproved
Contextual Assessment of Social Skills info iconApproved
Liebowitz Social Anxiety Scale (LSAS) info iconApproved
Social Network Index info iconApproved
Age Differentiation Test info iconApproved
Measured Emotion Differentiation Test info iconApproved
Motivation and Pleasure Scale-Self-Report info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Wechsler Abbreviated Scale of Intelligence (WASI) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study NameAbstractCollection/Study SubjectsData UsageState
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