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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neurobehavioral Research on Infants at Risk for SLI and Autism
Helen Tager-flusberg 
The specific aims of the research are (1) to identify markers that distinguish between infants at risk for SLI or ASD and low risk controls; (2) to identify the predictors of later SLI and ASD diagnoses (at 36 months of age) from measures collected between 6 and 12 months of age; and (3) to compare developmental trajectories of key language and related social/cognitive measures between 6 and 36 months in infants with and without clinical outcomes. These aims will be pursued in a longitudinal prospective design following infants from 6 to 36 months of age. Data will be collected on language and social perception using behavioral, eye-tracking and neurophysiological measures as well as general measures of cognitive and brain development (head circumference; EEG).
NDAR
Closed
Shared
$3,953,029.00
32

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NIH - Extramural None


R01DC010290-01 Neurobehavioral Research on Infants at Risk for SLI and Autism 07/01/2009 06/30/2014 BOSTON UNIVERSITY (CHARLES RIVER CAMPUS) $3,953,029.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 34
Adapted ADOS Module 1 Clinical Assessments 16
Adapted ADOS Module 2 Clinical Assessments 1
Autism Diagnostic Observation Schedule (ADOS) - Module 4 Clinical Assessments 2
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 6
BU Demographics Clinical Assessments 31
BU Medical Form Clinical Assessments 30
Dean Handedness Inventory Clinical Assessments 30
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 31
Ravens Coloured Progressive Matrices (CPM) Clinical Assessments 35
Repetitive Behavior Scale - Revised (RBS-R) (2000) Clinical Assessments 34
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 29

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27616938Create StudyGreater Pupil Size in Response to Emotional Faces as an Early Marker of Social-Communicative Difficulties in Infants at High Risk for Autism.Infancy : the official journal of the International Society on Infant StudiesWagner JB, Luyster RJ, Tager-Flusberg H, Nelson CA2016 Sep-OctRelevant
27358719Create StudyCommentary: sex difference differences? A reply to Constantino.Molecular autismMessinger DS, Young GS, Webb SJ, Ozonoff S, Bryson SE, Carter A, Carver L, Charman T, Chawarska K, Curtin S, Dobkins K, Hertz-Picciotto I, Hutman T, Iverson JM, Landa R, Nelson CA, Stone WL, Tager-Flusberg H, Zwaigenbaum L2016Not Relevant
26953849Create StudyA developmental neuroscience approach to the search for biomarkers in autism spectrum disorder.Current opinion in neurologyVarcin KJ, Nelson CAApril 2016Not Relevant
26502110Create StudyRisk Factors Associated With Language in Autism Spectrum Disorder: Clues to Underlying Mechanisms.Journal of speech, language, and hearing research : JSLHRTager-Flusberg HFebruary 2016Not Relevant
26478642Create StudyThe role of early visual attention in social development.International journal of behavioral developmentWagner JB, Luyster RJ, Yim JY, Tager-Flusberg H, Nelson CAMarch 1, 2013Not Determined
26335733Create StudyDefining language impairments in a subgroup of children with autism spectrum disorder.Science China. Life sciencesTager-Flusberg HOctober 2015Not Determined
26174704Create StudyMaternal Vocal Feedback to 9-Month-Old Infant Siblings of Children with ASD.Autism research : official journal of the International Society for Autism ResearchTalbott MR, Nelson CA, Tager-Flusberg HJuly 14, 2015Not Determined
26109246Create StudyEye-tracking measurements of language processing: developmental differences in children at high risk for ASD.Journal of autism and developmental disordersChita-Tegmark M, Arunachalam S, Nelson CA, Tager-Flusberg HOctober 2015Not Determined
26088664Create StudyShortened Telomeres in Families With a Propensity to Autism.Journal of the American Academy of Child and Adolescent PsychiatryNelson CA, Varcin KJ, Coman NK, DeVivo I, Tager-Flusberg HJuly 2015Not Determined
25813603Create StudyInhibition-Based Biomarkers for Autism Spectrum Disorder.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeuticsLevin AR, Nelson CAJuly 2015Not Determined
25808162Create StudyAtypical hemispheric specialization for faces in infants at risk for autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKeehn B, Vogel-Farley V, Tager-Flusberg H, Nelson CAApril 2015Not Determined
25703030Create StudyDiary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life.Journal of autism and developmental disordersTalbott MR, Nelson CA, Tager-Flusberg HJuly 2015Not Determined
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska K, Shic F, Macari S, Campbell DJ, Brian J, Landa R, Hutman T, Nelson CA, Ozonoff S, Tager-Flusberg H, Young GS, Zwaigenbaum L, Cohen IL, Charman T, Messinger DS, Klin A, Johnson S, Bryson SDecember 2014Not Determined
25140874Create StudyFunctional connectivity in the first year of life in infants at risk for autism spectrum disorder: an EEG study.PloS oneRighi G, Tierney AL, Tager-Flusberg H, Nelson CA2014Not Determined
24353165Create StudyAssessing the minimally verbal school-aged child with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKasari C, Brady N, Lord C, Tager-Flusberg HDecember 2013Not Relevant
24183618Create StudyNeural measures of social attention across the first years of life: characterizing typical development and markers of autism risk.Developmental cognitive neuroscienceLuyster RJ, Powell C, Tager-Flusberg H, Nelson CAApril 2014Not Determined
24128733Create StudyThe use of near-infrared spectroscopy in the study of typical and atypical development.NeuroImageVanderwert RE, Nelson CAJanuary 15, 2014Not Determined
24124067Create StudyMinimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.Autism research : official journal of the International Society for Autism ResearchTager-Flusberg H, Kasari CDecember 2013Not Determined
23989937Create StudyAlpha asymmetry in infants at risk for autism spectrum disorders.Journal of autism and developmental disordersGabard-Durnam L, Tierney AL, Vogel-Farley V, Tager-Flusberg H, Nelson CAFebruary 2015Not Determined
23975145Create StudyGuidelines and best practices for electrophysiological data collection, analysis and reporting in autism.Journal of autism and developmental disordersWebb, Sara Jane; Bernier, Raphael; Henderson, Heather A; Johnson, Mark H; Jones, Emily J H; Lerner, Matthew D; McPartland, James C; Nelson, Charles A; Rojas, Donald C; Townsend, Jeanne; Westerfield, MarissaFebruary 2015Not Relevant
23964223Create StudyFunctional connectivity in the first year of life in infants at-risk for autism: a preliminary near-infrared spectroscopy study.Frontiers in human neuroscienceKeehn B, Wagner JB, Tager-Flusberg H, Nelson CA2013Not Determined
23585026Create StudyMaternal gesture use and language development in infant siblings of children with autism spectrum disorder.Journal of autism and developmental disordersTalbott MR, Nelson CA, Tager-Flusberg HJanuary 2015Not Determined
23576966Create StudyNeural processing of facial identity and emotion in infants at high-risk for autism spectrum disorders.Frontiers in human neuroscienceFox SE, Wagner JB, Shrock CL, Tager-Flusberg H, Nelson CA2013Not Determined
23452686Create StudyBeyond autism: a baby siblings research consortium study of high-risk children at three years of age.Journal of the American Academy of Child and Adolescent PsychiatryMessinger D, Young GS, Ozonoff S, Dobkins K, Carter A, Zwaigenbaum L, Landa RJ, Charman T, Stone WL, Constantino JN, Hutman T, Carver LJ, Bryson S, Iverson JM, Strauss MS, Rogers SJ, Sigman MMarch 2013Not Determined
23445896Create StudyBrain functional networks in syndromic and non-syndromic autism: a graph theoretical study of EEG connectivity.BMC medicinePeters JM, Taquet M, Vega C, Jeste SS, Fernández IS, Tan J, Nelson CA, Sahin M, Warfield SK2013Not Determined
23362034Create StudyIdentifying early-risk markers and developmental trajectories for language impairment in neurodevelopmental disorders.Developmental disabilities research reviewsLuyster RJ, Seery A, Talbott MR, Tager-Flusberg H2011Not Determined
23287023Create StudyAtypical lateralization of ERP response to native and non-native speech in infants at risk for autism spectrum disorder.Developmental cognitive neuroscienceSeery AM, Vogel-Farley V, Tager-Flusberg H, Nelson CAJuly 2013Not Determined
22745707Create StudyDevelopmental trajectories of resting EEG power: an endophenotype of autism spectrum disorder.PloS oneTierney AL, Gabard-Durnam L, Vogel-Farley V, Tager-Flusberg H, Nelson CA2012Not Determined
22365458Create StudyFacing autism: eye tracking paves the way to underlying mechanisms.Journal of the American Academy of Child and Adolescent PsychiatryNelson CAMarch 2012Not Determined
22142677Create StudyLoss of white matter microstructural integrity is associated with adverse neurological outcome in tuberous sclerosis complex.Academic radiologyPeters JM, Sahin M, Vogel-Farley VK, Jeste SS, Nelson CA, Gregas MC, Prabhu SP, Scherrer B, Warfield SKJanuary 2012Not Determined
21970828Create StudyCommon neurological co-morbidities in autism spectrum disorders.Current opinion in pediatricsMaski KP, Jeste SS, Spence SJDecember 2011Not Determined
21844053Create StudyRecurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study.PediatricsOzonoff S, Young GS, Carter A, Messinger D, Yirmiya N, Zwaigenbaum L, Bryson S, Carver LJ, Constantino JN, Dobkins K, Hutman T, Iverson JM, Landa R, Rogers SJ, Sigman M, Stone WLSeptember 2011Not Determined
21811483Create StudyNeural processing of repetition and non-repetition grammars in 7- and 9-month-old infants.Frontiers in psychologyWagner JB, Fox SE, Tager-Flusberg H, Nelson CA2011Not Determined
21442325Create StudyNeural correlates of familiar and unfamiliar face processing in infants at risk for autism spectrum disorders.Brain topographyLuyster RJ, Wagner JB, Vogel-Farley V, Tager-Flusberg H, Nelson CAOctober 2011Not Determined
21342500Create StudyEEG complexity as a biomarker for autism spectrum disorder risk.BMC medicineBosl W, Tierney A, Tager-Flusberg H, Nelson C2011Not Determined
20800990Create StudyThe origins of social impairments in autism spectrum disorder: studies of infants at risk.Neural networks : the official journal of the International Neural Network SocietyTager-Flusberg H2010 Oct-NovNot Determined

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
27616938Create StudyGreater Pupil Size in Response to Emotional Faces as an Early Marker of Social-Communicative Difficulties in Infants at High Risk for Autism.Infancy : the official journal of the International Society on Infant StudiesWagner JB, Luyster RJ, Tager-Flusberg H, Nelson CA2016 Sep-Oct

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Ravens Coloured Progressive Matrices (CPM) info iconApproved
ABC Community info iconApproved
ADOS info iconApproved
Research Subject and Pedigree info iconApproved
Demographics info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Dean Laterality Handedness info iconApproved
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Medical History info iconApproved
EEG info iconApproved
Eye Tracking info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.