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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

Collection - Use Existing Experiment

To associate an experiment to the current collection, just select an axperiment from the table below then click the associate experiment button to persist your changes (saving the collection is not required). Note that once an experiment has been associated to two or more collections, the experiment will not longer be editable.

The table search feature is case insensitive and targets the experiment id, experiment name and experiment type columns. The experiment id is searched only when the search term entered is a number, and filtered using a startsWith comparison. When the search term is not numeric the experiment name is used to filter the results.

SelectExperiment IdExperiment NameExperiment Type
  • Select One
  • EEG
  • EGG
  • Eye Tracking
  • Omics
  • fMRI
Created On
886RestfMRI02/14/2018
885SARTfMRI02/14/2018
884Plasma metabolic profileOmics02/05/2018
878Social Challenge AssessmentEye Tracking01/26/2018
877PRV-005-EEGEEG01/22/2018
876Mixed Anti and Pro (vgs) saccade mixed blocked eye trackingEye Tracking01/22/2018
875Attention modulation taskEye Tracking01/17/2018
874ruthldopa resting 17 and 18fMRI01/16/2018
873ruthldopa resting 15 and 16fMRI01/16/2018
872ruthldopa resting 13 and 14fMRI01/16/2018
871ruthldopa resting 11 and 12fMRI01/16/2018
870Resting State fMRIfMRI01/12/2018
869cyberballfMRI01/12/2018
868MDD_PilotfMRI01/12/2018
867Velten Mood Induction State-ItemfMRI01/12/2018
866Emotional Hemifield Task (EHT)EEG01/12/2018
865Genome EditingOmics01/12/2018
864parvizi_eeg_118EEG01/12/2018
863parvizi_eeg_117EEG01/12/2018
862parvizi_eeg_116EEG01/12/2018
861parvizi_eeg_115EEG01/12/2018
860parvizi_eeg_114EEG01/12/2018
859parvizi_eeg_113EEG01/12/2018
858PRV-003-EEGEEG01/12/2018
857PRV-004-EEGEEG01/12/2018
856PRV-007-EEGEEG01/12/2018
855Regulating Emotional Responses to Visual Images Across the Affective Instability SpectrumfMRI01/12/2018
854PRV-002-EEGEEG01/12/2018
853R61 Ezogabine Resting State FMRIfMRI01/11/2018
852Paired AssociatesfMRI01/11/2018
851PRV-001-EEGEEG01/11/2018
850Reward ProcessingfMRI01/11/2018
849Resting EEG (1024 samples/s)EEG01/11/2018
845Fast face -1 runfMRI01/10/2018
844MIST_MAST_fMRIfMRI01/10/2018
843RTT AHA-1Omics01/09/2018
84230 words (simultaneous fMRI and EEG acquisition)EEG01/08/2018
841Neural Correlates of Episodic Retrieval fMRI01/08/2018
84030 words (simultaneous fMRI and EEG acquisition)fMRI01/08/2018
838Memory Guided Saccade Encode and Maintenance v3fMRI01/05/2018
837Memory Guided Saccade Encode and Maintenance v2fMRI01/05/2018
836Food ExposurefMRI01/03/2018
835Model ExposurefMRI01/02/2018
834BlankingEye Tracking12/28/2017
833DoubleStepEye Tracking12/26/2017
832Memory Guided Saccade Encode and Maintenance v1 fMRI12/21/2017
831Mixed Anti and Pro (vgs) saccade mixed blocked taskfMRI12/21/2017
830T1 AlternativefMRI12/19/2017
829fMRI Movie Trailer Video 2fMRI12/18/2017
828fMRI Movie Trailer Video 1fMRI12/18/2017
Collection - Add Experiment
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Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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The Data Expected list for this Collection shows some raw data as missing. Contact the NDA Help Desk with any questions.


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Your Collection is now in Data Analysis phase and exempt from biannual submissions. Analyzed data is still expected prior to publication or no later than the project end date.


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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Neurobehavioral Research on Infants at Risk for SLI and Autism
Helen Tager-flusberg 
The specific aims of the research are (1) to identify markers that distinguish between infants at risk for SLI or ASD and low risk controls; (2) to identify the predictors of later SLI and ASD diagnoses (at 36 months of age) from measures collected between 6 and 12 months of age; and (3) to compare developmental trajectories of key language and related social/cognitive measures between 6 and 36 months in infants with and without clinical outcomes. These aims will be pursued in a longitudinal prospective design following infants from 6 to 36 months of age. Data will be collected on language and social perception using behavioral, eye-tracking and neurophysiological measures as well as general measures of cognitive and brain development (head circumference; EEG).
NDAR
Funding Completed
Shared
$3,953,029.00
32
250
284
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NIH - Extramural None


R01DC010290-01 Neurobehavioral Research on Infants at Risk for SLI and Autism 07/01/2009 06/30/2014 250 284 BOSTON UNIVERSITY (CHARLES RIVER CAMPUS) $3,953,029.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Aberrant Behavior Checklist (ABC) - Community Clinical Assessments 34
Adapted ADOS Module 1 Clinical Assessments 16
Adapted ADOS Module 2 Clinical Assessments 1
Autism Diagnostic Observation Schedule (ADOS) - Module 4 Clinical Assessments 2
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 1 Clinical Assessments 2
Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2) - Module 3 Clinical Assessments 6
BU Demographics Clinical Assessments 31
BU Medical Form Clinical Assessments 30
Dean Handedness Inventory Clinical Assessments 30
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 31
Ravens Coloured Progressive Matrices (CPM) Clinical Assessments 35
Repetitive Behavior Scale - Revised (RBS-R) (2000) Clinical Assessments 34
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 29

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
28922545Create StudyNeural responses to linguistic stimuli in children with and without autism spectrum disorder.The European journal of neuroscienceFinch KH, Tager-Flusberg H, Nelson CASeptember 2017Not Determined
28903722Create StudyEEG power at 3 months in infants at high familial risk for autism.Journal of neurodevelopmental disordersLevin AR, Varcin KJ, O'Leary HM, Tager-Flusberg H, Nelson CASeptember 2017Not Determined
28384664Create StudyVocalization Rate and Consonant Production in Toddlers at High and Low Risk for Autism.Journal of speech, language, and hearing research : JSLHRChenausky K, Nelson C, Tager-Flusberg HApril 2017Not Determined
28174606Create StudyLateralization of ERPs to speech and handedness in the early development of Autism Spectrum Disorder.Journal of neurodevelopmental disordersFinch KH, Seery AM, Talbott MR, Nelson CA, Tager-Flusberg HJanuary 2017Not Determined
27829034Create StudyAuditory-Motor Mapping Training: Comparing the Effects of a Novel Speech Treatment to a Control Treatment for Minimally Verbal Children with Autism.PloS oneChenausky K, Norton A, Tager-Flusberg H, Schlaug GJanuary 2016Not Determined
27616938Create StudyGreater Pupil Size in Response to Emotional Faces as an Early Marker of Social-Communicative Difficulties in Infants at High Risk for Autism.Infancy : the official journal of the International Society on Infant StudiesWagner JB, Luyster RJ, Tager-Flusberg H, Nelson CA2016 Sep-OctNot Determined
27358719Create StudyCommentary: sex difference differences? A reply to Constantino.Molecular autismMessinger DS, Young GS, Webb SJ, Ozonoff S, Bryson SE, Carter A, Carver L, Charman T, Chawarska K, Curtin S, Dobkins K, Hertz-Picciotto I, Hutman T, Iverson JM, Landa R, Nelson CA, Stone WL, Tager-Flusberg H, Zwaigenbaum L2016Not Relevant
26953849Create StudyA developmental neuroscience approach to the search for biomarkers in autism spectrum disorder.Current opinion in neurologyVarcin KJ, Nelson CAApril 2016Not Relevant
26502110Create StudyRisk Factors Associated With Language in Autism Spectrum Disorder: Clues to Underlying Mechanisms.Journal of speech, language, and hearing research : JSLHRTager-Flusberg HFebruary 2016Not Relevant
26478642Create StudyThe role of early visual attention in social development.International journal of behavioral developmentWagner JB, Luyster RJ, Yim JY, Tager-Flusberg H, Nelson CAMarch 1, 2013Not Determined
26476738Create StudyLanguage Differences at 12 Months in Infants Who Develop Autism Spectrum Disorder.Journal of autism and developmental disordersLazenby DC, Sideridis GD, Huntington N, Prante M, Dale PS, Curtin S, Henkel L, Iverson JM, Carver L, Dobkins K, Akshoomoff N, Tagavi D, Nelson CA, Tager-Flusberg HMarch 2016Not Determined
26335733Create StudyDefining language impairments in a subgroup of children with autism spectrum disorder.Science China. Life sciencesTager-Flusberg HOctober 2015Not Determined
26174704Create StudyMaternal Vocal Feedback to 9-Month-Old Infant Siblings of Children with ASD.Autism research : official journal of the International Society for Autism ResearchTalbott MR, Nelson CA, Tager-Flusberg HJuly 14, 2015Not Determined
26109246Create StudyEye-tracking measurements of language processing: developmental differences in children at high risk for ASD.Journal of autism and developmental disordersChita-Tegmark M, Arunachalam S, Nelson CA, Tager-Flusberg HOctober 2015Not Determined
26088664Create StudyShortened Telomeres in Families With a Propensity to Autism.Journal of the American Academy of Child and Adolescent PsychiatryNelson CA, Varcin KJ, Coman NK, DeVivo I, Tager-Flusberg HJuly 2015Not Determined
25813603Create StudyInhibition-Based Biomarkers for Autism Spectrum Disorder.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeuticsLevin AR, Nelson CAJuly 2015Not Determined
25808162Create StudyAtypical hemispheric specialization for faces in infants at risk for autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKeehn B, Vogel-Farley V, Tager-Flusberg H, Nelson CAApril 2015Not Determined
25703030Create StudyDiary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life.Journal of autism and developmental disordersTalbott MR, Nelson CA, Tager-Flusberg HJuly 2015Not Determined
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska K, Shic F, Macari S, Campbell DJ, Brian J, Landa R, Hutman T, Nelson CA, Ozonoff S, Tager-Flusberg H, Young GS, Zwaigenbaum L, Cohen IL, Charman T, Messinger DS, Klin A, Johnson S, Bryson SDecember 2014Not Determined
25140874Create StudyFunctional connectivity in the first year of life in infants at risk for autism spectrum disorder: an EEG study.PloS oneRighi G, Tierney AL, Tager-Flusberg H, Nelson CA2014Not Determined
24353165Create StudyAssessing the minimally verbal school-aged child with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchKasari C, Brady N, Lord C, Tager-Flusberg HDecember 2013Not Relevant
24183618Create StudyNeural measures of social attention across the first years of life: characterizing typical development and markers of autism risk.Developmental cognitive neuroscienceLuyster RJ, Powell C, Tager-Flusberg H, Nelson CAApril 2014Not Determined
24128733Create StudyThe use of near-infrared spectroscopy in the study of typical and atypical development.NeuroImageVanderwert RE, Nelson CAJanuary 15, 2014Not Determined
24124067Create StudyMinimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.Autism research : official journal of the International Society for Autism ResearchTager-Flusberg H, Kasari CDecember 2013Not Determined
23989937Create StudyAlpha asymmetry in infants at risk for autism spectrum disorders.Journal of autism and developmental disordersGabard-Durnam L, Tierney AL, Vogel-Farley V, Tager-Flusberg H, Nelson CAFebruary 2015Not Determined
23975145Create StudyGuidelines and best practices for electrophysiological data collection, analysis and reporting in autism.Journal of autism and developmental disordersWebb, Sara Jane; Bernier, Raphael; Henderson, Heather A; Johnson, Mark H; Jones, Emily J H; Lerner, Matthew D; McPartland, James C; Nelson, Charles A; Rojas, Donald C; Townsend, Jeanne; Westerfield, MarissaFebruary 2015Not Relevant
23964223Create StudyFunctional connectivity in the first year of life in infants at-risk for autism: a preliminary near-infrared spectroscopy study.Frontiers in human neuroscienceKeehn B, Wagner JB, Tager-Flusberg H, Nelson CA2013Not Determined
23585026Create StudyMaternal gesture use and language development in infant siblings of children with autism spectrum disorder.Journal of autism and developmental disordersTalbott MR, Nelson CA, Tager-Flusberg HJanuary 2015Not Determined
23576966Create StudyNeural processing of facial identity and emotion in infants at high-risk for autism spectrum disorders.Frontiers in human neuroscienceFox SE, Wagner JB, Shrock CL, Tager-Flusberg H, Nelson CA2013Not Determined
23452686Create StudyBeyond autism: a baby siblings research consortium study of high-risk children at three years of age.Journal of the American Academy of Child and Adolescent PsychiatryMessinger D, Young GS, Ozonoff S, Dobkins K, Carter A, Zwaigenbaum L, Landa RJ, Charman T, Stone WL, Constantino JN, Hutman T, Carver LJ, Bryson S, Iverson JM, Strauss MS, Rogers SJ, Sigman MMarch 2013Not Determined
23445896Create StudyBrain functional networks in syndromic and non-syndromic autism: a graph theoretical study of EEG connectivity.BMC medicinePeters JM, Taquet M, Vega C, Jeste SS, Fernández IS, Tan J, Nelson CA, Sahin M, Warfield SK2013Not Determined
23362034Create StudyIdentifying early-risk markers and developmental trajectories for language impairment in neurodevelopmental disorders.Developmental disabilities research reviewsLuyster RJ, Seery A, Talbott MR, Tager-Flusberg H2011Not Determined
23287023Create StudyAtypical lateralization of ERP response to native and non-native speech in infants at risk for autism spectrum disorder.Developmental cognitive neuroscienceSeery AM, Vogel-Farley V, Tager-Flusberg H, Nelson CAJuly 2013Not Determined
22745707Create StudyDevelopmental trajectories of resting EEG power: an endophenotype of autism spectrum disorder.PloS oneTierney AL, Gabard-Durnam L, Vogel-Farley V, Tager-Flusberg H, Nelson CA2012Not Determined
22661408Create StudyImpaired language pathways in tuberous sclerosis complex patients with autism spectrum disorders.Cerebral cortex (New York, N.Y. : 1991)Lewis WW, Sahin M, Scherrer B, Peters JM, Suarez RO, Vogel-Farley VK, Jeste SS, Gregas MC, Prabhu SP, Nelson CA, Warfield SKJuly 2013Not Determined
22365458Create StudyFacing autism: eye tracking paves the way to underlying mechanisms.Journal of the American Academy of Child and Adolescent PsychiatryNelson CAMarch 2012Not Determined
22142677Create StudyLoss of white matter microstructural integrity is associated with adverse neurological outcome in tuberous sclerosis complex.Academic radiologyPeters JM, Sahin M, Vogel-Farley VK, Jeste SS, Nelson CA, Gregas MC, Prabhu SP, Scherrer B, Warfield SKJanuary 2012Not Determined
21970828Create StudyCommon neurological co-morbidities in autism spectrum disorders.Current opinion in pediatricsMaski KP, Jeste SS, Spence SJDecember 2011Not Determined
21844053Create StudyRecurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study.PediatricsOzonoff S, Young GS, Carter A, Messinger D, Yirmiya N, Zwaigenbaum L, Bryson S, Carver LJ, Constantino JN, Dobkins K, Hutman T, Iverson JM, Landa R, Rogers SJ, Sigman M, Stone WLSeptember 2011Not Determined
21811483Create StudyNeural processing of repetition and non-repetition grammars in 7- and 9-month-old infants.Frontiers in psychologyWagner JB, Fox SE, Tager-Flusberg H, Nelson CA2011Not Determined
21442325Create StudyNeural correlates of familiar and unfamiliar face processing in infants at risk for autism spectrum disorders.Brain topographyLuyster RJ, Wagner JB, Vogel-Farley V, Tager-Flusberg H, Nelson CAOctober 2011Not Determined
21342500Create StudyEEG complexity as a biomarker for autism spectrum disorder risk.BMC medicineBosl W, Tierney A, Tager-Flusberg H, Nelson C2011Not Determined
20800990Create StudyThe origins of social impairments in autism spectrum disorder: studies of infants at risk.Neural networks : the official journal of the International Neural Network SocietyTager-Flusberg H2010 Oct-NovNot Determined

The Data Expected tab is a tracking and scheduling tool. It displays the data that is expected from the project, along with final expected enrollment counts and initial dates for the submission and sharing of the data. There are two types of Data Expected displayed:

  1. Data Expected from Relevant Publications: Publications reported in association with the Collection’s grant and determined as relevant to data expected for sharing are listed first. Any data specific to these publications are expected to be shared using the NDA Study feature. If a publication on this list is marked relevant in error, the PI of the project can correct the status in the Publications tab. Once created Studies are visible in the Associated Studies tab. When sharing a Study, only the outcome measures for the subjects/time-points specific to the publication are shared. Other data with share dates that have not yet been met as defined below remain embargoed. Investigators can initiate Study creation from this page when logged in.
  2. Data Expected by Data Structure: The table displayed second is defined by the investigator and lists all of the measures expected for sharing as defined in the Data Dictionary. Targeted Enrollment indicates the expected final unique subject count for that structure. Initial submission dates indicate when NDA should expect the first upload of those data, and initial sharing dates indicate when the first round of those data is expected to be shared. Click the i next to the Data Expected title to view the structures that are counted within that item.

Those with Administrator control over the Collection may also use the Data Expected tab to request an exemption period from an expected biannual submission by providing a timeframe and reason, and then saving the Collection. Please note the program officer of the associated grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.

You can use "Add New Data Expected" to add exsiting structures and create your project's list. However, this is also the method you can use to request new structures be created for your project. When adding the Data Expected item, if the structure already exists you can locate it and specify your dates and enrollment. To add a new structure and request it be defined in the Data Dictionary, select Upload Definition and attach the definition or material needed to create it, including manual, codebooks, forms, etc. If you have multiple files, please upload a zipped archive containing them all.

Expected dates should be selected based on the standard Data Sharing Regimen and are restricted to within date ranges based on the project start and end dates.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
ADOS info iconApproved
Ravens Coloured Progressive Matrices (CPM) info iconApproved
ABC Community info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Handedness Form info iconApproved
Medical History info iconApproved
Demographics info iconApproved
Research Subject and Pedigree info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Eye Tracking info iconApproved
EEG info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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