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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission.

Please provide a reason for the requested submission exemption as the
time-frame during which the exemption will be active.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Yale Autism Center of Excellence: Mechanisms of Social Engagement in the Autism Spectrum Disorders
Fred Volkmar 
The Yale ACE consists of 5 project areas and 3 core resources. Projects I, II, and III focus on the same cohort of 12- to 24-month old infants with ASD followed up longitudinally. Project IV involves structural and functional neuroimaging protocols on a group of 10-year-olds with ASD who were extensively characterized at the age of 2 and 4 years. Project V includes cytogenetic studies of the infants evaluated in Projects I, II, and III, and the ASD children evaluated in Project IV. The Administrative Core is charged with planning, oversight, and management of the Yale ACE. The Assessment Core ensures that all project areas have access to well-characterized patients, family members and control populations, from a behavioral/phenotypic standpoint and from a medical/pediatric and genetics standpoint. The Data Management and Analysis provides data management and data analytic expertise across projects.




Chart Expander
NIH - Extramural None

P50MH081756 Mechanisms of Social Engagement in Autism Spectrum Disorders 04/01/2008 03/31/2013 YALE UNIVERSITY

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
165Caregiver stimuli09/19/2014ApprovedEye Tracking

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 132
Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 144
Autism Diagnostic Observation Schedule (ADOS)- Module 2 Clinical Assessments 63
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 26
CHARGE Family Characteristics Questionnaire Clinical Assessments 169
CHARGE Medical History Clinical Assessments 175
CHARGE Physical Exam Clinical Assessments 90
CPEA STAART WISC 4 Clinical Assessments 15
CSBS DP Behavior Sample Clinical Assessments 195
DAS-II: Differential Ability Scales 2nd Ed. School Age Clinical Assessments 14
DAS-II:Differential Ability Scales 2nd Ed. Early Years Clinical Assessments 5
Eye Tracking Subject-Experiment Imaging 122
Intervention History Full Version Clinical Assessments 131
Karyotype Clinical Assessments 98
MacArthur-Bates CDI - Words and Gestures Form Clinical Assessments 157
MacArthur-Bates CDI - Words and Sentences Form Clinical Assessments 59
Modified CHARGE Family Medical History (2007) Clinical Assessments 143
Modified CHARGE Family Medical History (rev July 2007) Clinical Assessments 49
Mullen Scales of Early Learning Clinical Assessments 199
NIMH Medical History Questionnaire Clinical Assessments 166
Preschool Language Scale, Fourth Edition (PLS-4) Clinical Assessments 103
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 2
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 21
Social Responsiveness Scale (SRS) - Adult/Self Version Clinical Assessments 33
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 49
Vineland-II - Survey Form (2005) Clinical Assessments 141

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
No records found.

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Genetic Test info iconApproved
MacArthur Bates Communicative Development Inventory info iconApproved
Research Subject and Pedigree info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Preschool Language Scale (PLS) info iconApproved
ADOS info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
ADI-R info iconApproved
Vineland (Parent and Caregiver) info iconApproved
genomics/omics info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
ABC Community info iconApproved
Physical Exam info iconApproved
DAS-II: Differential Ability Scales info iconApproved
Dysmorphology Exam info iconApproved
Intervention History info iconApproved
Leiter International Performance Scale-Revised (Leiter-R) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Mullen Scales of Early Learning info iconApproved
Medical History info iconApproved
Communication and Symbolic Behavior Scales (CSBS) info iconApproved
Benton Facial Recognition Test (BFRT) info iconApproved
Reynell Developmental Language Scales info iconApproved
Victoria-Yale Face Processing Battery info iconApproved
Clinical Evaluation of Language Fundamentals (CELF) info iconApproved
EEG info iconApproved
Wechsler Intelligence Scale for Children info iconApproved
Eye Tracking info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.