|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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|
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
relationship |
Integer |
|
Required |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
mass_1_rs |
String |
50
|
Recommended |
1. It is difficult for me to contact my/my child's therapist when I need to. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD1, MASS_PARENT1 |
Query
|
mass_2 |
String |
50
|
Recommended |
2. I am comfortable with my/my child's therapist's age. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD2, MASS_PARENT2 |
Query
|
mass_3 |
String |
50
|
Recommended |
3. I feel like my/my child's therapist is an expert. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD3, MASS_PARENT3 |
Query
|
mass_4 |
String |
50
|
Recommended |
4. I feel like my/my child's therapist is qualified to help people my/my child's age. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD4, MASS_PARENT4 |
Query
|
mass_5 |
String |
50
|
Recommended |
5. I feel like my/my child's therapist knows how to help me/my child. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD5, MASS_PARENT5 |
Query
|
mass_6_rs |
String |
50
|
Recommended |
6. I wish I/my child were getting more information and advice at therapy. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD6, MASS_PARENT6 |
Query
|
mass_7_rs |
String |
50
|
Recommended |
7. I wish I/my child were getting more help with my/my child's problems at therapy. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD7, MASS_PARENT7 |
Query
|
mass_8_rs |
String |
50
|
Recommended |
8. I wish I'd/my child had more choice in choosing my/my child's therapist. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD8, MASS_PARENT8 |
Query
|
mass_9_rs |
String |
50
|
Recommended |
9. I wish I/my childwere getting other kinds of therapy than what I've gotten |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD9, MASS_PARENT9 |
Query
|
mass_10 |
String |
50
|
Recommended |
10. I like talking to my/my child's therapist. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD10, MASS_PARENT10 |
Query
|
mass_11_rs |
String |
50
|
Recommended |
11. My/my child's therapist tells me what to do too much. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD11, MASS_PARENT11 |
Query
|
mass_12_rs |
String |
50
|
Recommended |
12. When my/my child's therapist and I disagree about something, my therapist always thinks he/she is right. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD12 |
Query
|
mass_13 |
String |
50
|
Recommended |
13. My/my child's therapist understands my feelings and concerns. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD13, MASS_PARENT13 |
Query
|
mass_14 |
String |
50
|
Recommended |
14. I can tell my/my child's therapist things that I don't feel comfortable telling |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD14, MASS_PARENT14 |
Query
|
mass_15 |
String |
50
|
Recommended |
15. My/my child's therapist and I decide together what I should work on to help my problems get better. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD15, MASS_PARENT15 |
Query
|
mass_16_rs |
String |
50
|
Recommended |
16. My/my child's therapist has been too nosey. |
Strongly agree; Somewhat agree; Somewhat disagree; Strongly disagree
|
|
MASS_CHILD16, MASS_PARENT16 |
Query
|
mass_17 |
String |
50
|
Recommended |
17. Has therapy helped you/your child feel better about yourself/themself? |
Yes, a lot; Yes, somewhat; Yes, a little; No, not at all
|
|
MASS_CHILD17, MASS_PARENT17 |
Query
|
mass_18 |
String |
50
|
Recommended |
18. Has therapy helped your/your child's problems get better? |
Yes, a lot; Yes, somewhat; Yes, a little; No, not at all
|
|
MASS_CHILD18, MASS_PARENT18 |
Query
|
mass_19_rs |
String |
50
|
Recommended |
19. Has therapy made things worse in your/your child's life? |
Yes, a lot; Yes, somewhat; Yes, a little; No, not at all
|
|
MASS_CHILD19, MASS_PARENT19 |
Query
|
mass_20 |
String |
50
|
Recommended |
20. Has therapy helped you/your child learn more about yourself/them self? |
Yes, a lot; Yes, somewhat; Yes, a little; No, not at all
|
|
MASS_CHILD20, MASS_PARENT20 |
Query
|
mass_21 |
String |
50
|
Recommended |
21. Overall, has therapy helped you/your child? |
Yes, a lot; Yes, somewhat; Yes, a little; No, not at all
|
|
MASS_CHILD21, MASS_PARENT21 |