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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

PCP Knowledge and Practices Survey

0 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/02/2015
pcpkps01

View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query pcpkps_01 Integer Recommended Method to identify childern under 3 years of age "at risk" for developmental problems: Clinical assessment without the use of a screening instrument/checklist 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_02 Integer Recommended Method to identify childern under 3 years of age "at risk" for developmental problems: Informal checklist filled out by parents 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_03 Integer Recommended Method to identify childern under 3 years of age "at risk" for developmental problems: Informal checklist completed by staff or provider 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_04 Integer Recommended Method to identify childern under 3 years of age "at risk" for developmental problems: Formal screening using a validated tool such as the PEDS or Ages and Stages Questionnaire/ASQ 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_05 String 50 Recommended Specify Formal Screening validation tool
Query pcpkps_06 Integer Recommended Method to identify childern under 3 years of age "at risk" for developmental problems: Other method for monitoring development 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_07 String 50 Recommended Specify other method for monitoring development
Query pcpkps_08 Integer Recommended Use stardardized, validated developmental screening tools Routinely for all children at well child visits 0;1 0=No; 1=Yes
Query pcpkps_09 Integer Recommended Use stardardized, validated developmental screening tools Months for all children at well child visits 9;18;24;30;36
Query pcpkps_10 Integer Recommended Use stardardized, validated developmental screening tools Routinely for children who have older siblings with autism 0;1 0=No; 1=Yes
Query pcpkps_11 Integer Recommended Use stardardized, validated developmental screening tools Months for children who have older siblings with autism 9;18;24;30;36
Query pcpkps_12 Integer Recommended Use stardardized, validated developmental screening tools When parents raise concerns about development 0;1 0=No; 1=Yes
Query pcpkps_13 Integer Recommended Use stardardized, validated developmental screening tools When you have concerns about development 0;1 0=No; 1=Yes
Query pcpkps_14 Integer Recommended Use stardardized, validated developmental screening tools Other 0;1 0=No; 1=Yes
pcpkps_15 String 50 Recommended Use stardardized, validated developmental screening tools Other Specified
Query pcpkps_16 Integer Recommended How often do you use a validated autism-specific screening tool (e.g., M-CHAT) 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_17 String 50 Recommended Specify autism-specific screening tool
Query pcpkps_18 Integer Recommended Use autism-specific screening tool: Routinely for all children at well child visits 0;1 0=No; 1=Yes
Query pcpkps_19 Integer Recommended Use autism-specific screening tool: Months for all children at well child visits 9;18;24;30;36
Query pcpkps_20 Integer Recommended Use autism-specific screening tool: When parents raise concerns about autism 0;1 0=No; 1=Yes
Query pcpkps_21 Integer Recommended Use autism-specific screening tool: When you have concerns about autism 0;1 0=No; 1=Yes
Query pcpkps_22 Integer Recommended Use autism-specific screening tool: Other 0;1 0=No; 1=Yes
pcpkps_23 String 50 Recommended Use autism-specific screening tool: Specify Other
Query pcpkps_24 Float Recommended Percent of your 18-month-old patients receive the M-CHAT
Query pcpkps_25 Integer Recommended How often do your 18-month-old patients who screen positive on the M-CHAT receive the M-CHAT follow-up interview 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_26 Integer Recommended If a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child for a diagnostic evaluation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_27 Integer Recommended If a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child for a diagnostic evaluation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_28 Integer Recommended If a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child for a diagnostic evaluation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_29 Integer Recommended If a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_30 Integer Recommended If a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_31 Integer Recommended If a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_32 Integer Recommended If a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to another health care provider for consultation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_33 Integer Recommended If a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to another health care provider for consultation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_34 Integer Recommended If a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to another health care provider for consultation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_35 Integer Recommended If a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to another health care provider for treatment? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_36 Integer Recommended If a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to another health care provider for treatment? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_37 Integer Recommended If a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to another health care provider for treatment? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_38 Integer Recommended If a child screened positive of the M-CHAT at 18 monthshow often would you Wait and repeat the screening at a subsequent visit? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_39 Integer Recommended If a child screened positive of the M-CHAT at 24 monthshow often would you Wait and repeat the screening at a subsequent visit? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_40 Integer Recommended If a child screened positive of the M-CHAT at 30 monthshow often would you Wait and repeat the screening at a subsequent visit? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_41 Integer Recommended Implementing validated autism-specific screening tool barrier : Cost to practice 0::2;999 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_42 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of familiarity with screening tools 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_43 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of time 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_44 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of adequate reimbursement 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_45 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of staff 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_46 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of adequate sensitivity/specificity of screening tools 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_47 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of comfort talking to parents about autism concerns 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_48 Integer Recommended Implementing validated autism-specific screening tool barrier : Lack of community resources for diagnosis and/or treatment 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
Query pcpkps_49 Integer Recommended Implementing validated autism-specific screening tool barrier : Family language and/or cultural differences 0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_50 String 50 Recommended Implementing validated autism-specific screening tool barrier : Specify Family language and/or cultural differences
Query pcpkps_51 Integer Recommended What is the average age you would become concerned about the presence of autism?
Query pcpkps_52 Integer Recommended What is the youngest age you would become concerned about the presence of autism?
Query pcpkps_53 Integer Recommended What is the average age you would initiate a conversation about autism concerns with a parent?
Query pcpkps_54 Integer Recommended What is the youngest age you would initiate a conversation about autism concerns with a parent?
Query pcpkps_55 Integer Recommended What is the average age you would refer a child for a diagnostic evaluation for autism?
Query pcpkps_56 Integer Recommended What is the youngest age you would refer a child for a diagnostic evaluation for autism?
Query pcpkps_57 Integer Recommended How often do you refer children under age 3 who are showing signs of autism for a diagnostic evaluation? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
Query pcpkps_58 Integer Recommended How often do you refer children under age 3 who are showing signs of autism to the state-funded Early Intervention Program in your county? 0::2;999 0=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_59 String 50 Recommended Spcify state-funded early intervention program
Query pcpkps_60 Integer Recommended When referrals are made, how often do you receive feedback form the Early Intervention Program 0::4;999 0=less than 25 percent; 1=25-49 percent; 2=50-74 percent; 3=75-99 percent; 4=100 percent; 999=N/A
Query pcpkps_61 Integer Recommended How knowledgeable do you feel about recognizing the signs of autism in children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_62 Integer Recommended How knowledgeable do you feel about selecting and using autism screening tools for children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_63 Integer Recommended How comfortable do you feel discussing autism concerns with parents for children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_64 Integer Recommended How comfortable do you feel making an autism diagnosis in children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_65 Integer Recommended How knowledgeable do you feel about the diagnostic assessment resources in your community for children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_66 Integer Recommended How knowledgeable do you feel about the Early Intervention resources in your community for children under 3 years old? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_67 Integer Recommended How important do you feel it is to provide autism-specialized intervention to children under age 3 who demonstrate signs of autism? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_68 Integer Recommended How important do you feel it is to provide autism-specialized intervention to children under age 3 with diagnosed autism? 1::4;999 1=Not at all; 4=Extremely; 999=N/A
Query pcpkps_69 Integer Recommended Did child receive development screen 0;1;999 0=No; 1=Yes; 999=N/A
pcpkps_70 String 50 Recommended Development screen specified
Query pcpkps_71 Integer Recommended Development Screen Passed or Failed 0;1;999 0=Failed; 1=Passed; 999=N/A
Query pcpkps_72 Integer Recommended Did child receive ASD screen 0;1;999 0=No; 1=Yes; 999=N/A
pcpkps_73 String 50 Recommended ASD screen specified
Query pcpkps_74 Integer Recommended ASD Screen Passed or Failed 0;1;999 0=Failed; 1=Passed; 999=N/A
Query pcpkps_75 Integer Recommended Referrals Made 0;1;999 0=No; 1=Yes; 999=N/A
pcpkps_76 String 100 Recommended Referral Speicified
Query pcpkps_77 Integer Recommended ASD Risk factor: Parent ASD concern 0;1;999 0=No; 1=Yes; 999=N/A
Query pcpkps_78 Integer Recommended ASD Risk factor: PCP ASD concern 0;1;999 0=No; 1=Yes; 999=N/A
Query pcpkps_79 Integer Recommended ASD Risk factor: Screening failure 0;1;999 0=No; 1=Yes; 999=N/A
Query pcpkps_80 Integer Recommended ASD Risk factor: Older sibling with ASD 0;1;999 0=No; 1=Yes; 999=N/A
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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