|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
date_vrrsb |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age_vrrsb |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
vrrsb_q1 |
Integer |
|
Recommended |
1. Is your child able to express feelings by changes in facial expression? (for example: smiling in response to something that makes him or her happy or frowning in response to something that makes him or her sad) |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_1_express_feelings |
Query
|
vrrsb_q2 |
Integer |
|
Recommended |
2. Is it typical for your child to be "on the same wavelength" with you? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_2_wavelength |
Query
|
vrrsb_q3 |
Integer |
|
Recommended |
3. Is your child able to pretend (engage in make-believe play)? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_3_pretend |
Query
|
vrrsb_q4 |
Integer |
|
Recommended |
4. Does your child have a sense of humor? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_4_humor |
Query
|
vrrsb_q5 |
Integer |
|
Recommended |
5. Does your child try to involve others in play? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_5_involve |
Query
|
vrrsb_q6 |
Integer |
|
Recommended |
6. Does your child respond positively to adults who are trying to hold his/her attention? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_6_respond |
Query
|
vrrsb_q7 |
Integer |
|
Recommended |
7. Does your child look at you (making eye contact) when you are playing together? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_7_eye_contact |
Query
|
vrrsb_q8 |
Integer |
|
Recommended |
8. When you approach your child to play with him or her, does he/she seem happy to include you or glad that you are involved? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_8_happy_include |
Query
|
vrrsb_q9 |
Integer |
|
Recommended |
9. Does your child seem interested in whether you are paying attention to what he or she is doing? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_9_interested_attention |
Query
|
vrrsb_q10 |
Integer |
|
Recommended |
10. Is your child able to let you know what he or she DOESN'T want? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_10_doesnt_want |
Query
|
vrrsb_q11 |
Integer |
|
Recommended |
11. Is your child able to let you know what he or she DOES want? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_11_does_want |
Query
|
vrrsb_q12 |
Integer |
|
Recommended |
12. Does your child cooperate with an adult's request for help (e.g., clean-up, picking up toys)? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_12_cooperate |
Query
|
vrrsb_q13 |
Integer |
|
Recommended |
13. Does your child understand simple verbal requests? |
|
0=Not at all; 1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video; 9=N/A
|
q_13_understand |
Query
|
cogq15 |
Integer |
|
Recommended |
Is able to understand the meaning of others people's tone of voice and facial expressions. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_14_reacts, vrrsb_q14 |
Query
|
commq16 |
Integer |
|
Recommended |
Avoids eye contact or has unusual eye contact. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_15_avoid_eyes, vrrsb_q15 |
Query
|
vrrsb_q16 |
Integer |
|
Recommended |
16. Seems obsessed with certain sensory interests (e.g., mouthing or spinning objects for prolonged periods of time) |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_16_sensory_obsessed |
Query
|
mannerq24 |
Integer |
|
Recommended |
Has more difficulty than other children with changes in his/her routine. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_18_difficult_routines, vrrsb_q18 |
Query
|
motivq27 |
Integer |
|
Recommended |
Avoids starting social interactions with peers or adults. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_19_avoids_social, vrrsb_q19 |
Query
|
vrrsb_q20 |
Integer |
|
Recommended |
20. Seems odd or weird |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_20_odd |
Query
|
motivq34 |
Integer |
|
Recommended |
Avoids people who want to be emotionally close to him/her. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_21_avoid_emotionally, vrrsb_q21 |
Query
|
vrrsb_q22 |
Integer |
|
Recommended |
22. Has an unusually narrow range of things that he/she is interested in |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_22_narrow_interest |
Query
|
mannerq8 |
Integer |
|
Recommended |
Behaves in ways that seem strange or bizarre. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_23_bizarre_behavior, vrrsb_q23 |
Query
|
vrrsb_q24 |
Integer |
|
Recommended |
24. Seems uncoordinated for his/her age |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_24_uncoordinated |
Query
|
commq41 |
Integer |
|
Recommended |
Wanders aimlessly from one activity to another. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_25_aimless, vrrsb_q25 |
Query
|
cogq42 |
Integer |
|
Recommended |
Seems overly sensitive to sounds, textures, or smells. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_26_sensitive, vrrsb_q26 |
Query
|
awareq45 |
Integer |
|
Recommended |
Focuses his/her attention on the same thing that others are looking at or listening to. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_27_shared_focus, vrrsb_q27 |
Query
|
commq46 |
Integer |
|
Recommended |
Has overly serious facial expressions. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_28_serious, vrrsb_q28 |
Query
|
mannerq50 |
Integer |
|
Recommended |
Has repetitive, odd behaviors such as hand flapping or rocking. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_29_repetitive, vrrsb_q29 |
Query
|
vrrsb_q30 |
Integer |
|
Recommended |
30. Seems to interact with people as if they are objects |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_30_people_objects |
Query
|
cogq58 |
Integer |
|
Recommended |
Concentrates too much on parts of things rather than seeing the whole picture. For example, if asked to describe what happened in a story, he/she may talk only about the kind of clothes the characters were wearing. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_31_toy_parts, vrrsb_q31 |
Query
|
commq60 |
Integer |
|
Recommended |
Is emotionally distant, doesn't show his/her feelings |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_32_distant, vrrsb_q32 |
Query
|
vrrsb_q34 |
Integer |
|
Recommended |
34. When seeing a spinning object (e.g. a fan or mobile), may stare at it for more than five minutes |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_34_spinning |
Query
|
vrrsb_q35 |
Integer |
|
Recommended |
35. Is interested in what people around him/her are doing |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_35_interested_people |
Query
|
vrrsb_q36 |
Integer |
|
Recommended |
36. Shows unusual responses to being held / cuddled |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_36_cuddle_response |
Query
|
vrrsb_q37 |
Integer |
|
Recommended |
37. Is capable of expressing joy by smiling or facial gestures |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_37_expresses_joy |
Query
|
vrrsb_q38 |
Integer |
|
Recommended |
38. When offered a stuffed animal, will try to interact or pretend with it (hug it, pet it, or feed it) |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_38_stuffed_animal |
Query
|
vrrsb_q39 |
Integer |
|
Recommended |
39. Responds to his/her name being called |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_39_name_responds |
Query
|
vrrsb_q40 |
Integer |
|
Recommended |
40. Seems to prefer to be by himself/herself |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_40_prefer_alone |
Query
|
mannerq20 |
Integer |
|
Recommended |
Shows unusual sensory interests (e.g., mouthing or spinning objects) or strange ways of playing with toys. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=N/A
|
q_41_strange_play, vrrsb_q41 |
Query
|
vrrsb_q42 |
Integer |
|
Recommended |
42. Indicates, by pointing, when he/she wants something or is interested in something |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_42_points |
Query
|
vrrsb_q47 |
Integer |
|
Recommended |
47. Is content to play with the same toy for hours |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_47_content_same |
Query
|
vrrsb_q49 |
Integer |
|
Recommended |
Please estimate approx. total # of words your child uses TO COMMUNICATE with you/anyone: |
|
|
q_50_num_words |
|
vrrsb_q50 |
String |
500
|
Recommended |
Please write the most sophisticated sentence your child has spoken in the past 2 months--if he/she ONLY speaks in phrases, please write the most sophisticated phrase your child has spoken in the past 2 months: |
|
|
q_51_sophisticated_sentence |
Query
|
vrrsb_app1 |
Integer |
|
Recommended |
Tends to withdraw or isolate him/her self when you attempt to play with him/her? |
|
0=No true; 1=Sometimes true; 2=Often true; 3=Almost always true; 9=N/A
|
q_49_withdraw |
|
comqother |
String |
255
|
Recommended |
Respondent - Other (text) |
|
|
completed_by_other, respndnt_vrrsb_other |
Query
|
respndnt_vrrsb |
Integer |
|
Recommended |
This form filled out by |
|
2=Day care provider; 3=Mother; 4=Father; 5=Step mother; 9 =Other
|
completed_by |
Query
|
commq21 |
Integer |
|
Recommended |
Is able to imitate others' actions. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=NA
|
q_17_imitation, vrrsb_q17 |
Query
|
motivq65 |
Integer |
|
Recommended |
Stares or gazes off into space. |
|
0=Not True;1=Sometimes True;2=Often True;3=Almost Always True; 9=NA
|
q_33_stares, vrrsb_q33 |
Query
|
vrrsb_q43 |
Integer |
|
Recommended |
Has unusual sleep patterns/ wakes up repeatedly in middle of night |
|
1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video
|
q_43_sleep |
Query
|
vrrsb_q44 |
Integer |
|
Recommended |
Can assemble a puzzle with 8 or more inter-locking pieces |
|
1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video
|
q_44_puzzle |
Query
|
vrrsb_q45 |
Integer |
|
Recommended |
Seems eager to explore new play materials |
|
1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video
|
q_45_eager_play |
Query
|
vrrsb_q46 |
Integer |
|
Recommended |
Seems inquisitive or fascinated by complicated toys or materials |
|
1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video
|
q_46_complicated_toys |
Query
|
vrrsb_q48 |
Integer |
|
Recommended |
Able to perform simple construction tasks, such as placing four different shapes into the correct place in an inset (wooden) puzzle |
|
1=Some what but less than child in video; 2=About the same as child in video; 3=More than child in video
|
q_48_construction |
Query
|
videorefscore |
Integer |
|
Recommended |
Video-referenced Score |
0::99
|
Sum of 1-13(all reversed)
|
video_reference_score |
Query
|
rsbtotal |
Integer |
|
Recommended |
Reciprocal Social Behavior Total Score |
0::199
|
Sum of 1-42, 47 and appendix item 1 with reversed(1-13,14, 17, 27, 35, 37, 38,39, 42)
|
rsb_total_score |
Query
|
socialcomm |
Integer |
|
Recommended |
Social Communication Score |
0::99
|
Sum of 1-13, 14, 15, 17, 19, 21, 25, 26, 27, 28, 30, 32, 33, 35, 36, 37, 38, 39, 40, 42, ap1 with reversed(1-13, 14, 17, 27, 35, 37, 38, 39, 42)
|
social_communicative_items |
Query
|
rrbscore |
Integer |
|
Recommended |
Restricted, Repetitive Behavior Score |
0::99
|
Sum of 16, 18, 20, 22, 23, 24, 29, 31, 34, 41, 47
|
restricted_repetitive_items |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|