|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid, ndar_whoqol |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
record_id, subjectid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
ap_date, date9, interview_date_whoqol, pp_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age_a, age_whoqol |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, gender_whoqol, sex_a, whoqol_gender |
Query
|
whoqol1 |
Integer |
|
Recommended |
How would you rate your quality of life? |
1::5
|
1=Very poor 2=Poor; 3=Neither poor nor good; 4=Good; 5=Very good
|
qol, whoqol_1 |
Query
|
whoqol2 |
Integer |
|
Recommended |
How satisfied are you with your health? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
satisfiedwhealth, whoqol_2 |
Query
|
whoqol3 |
Integer |
|
Recommended |
To what extent do you feel that physical pain prevents you from doing what you need to do? |
1::5
|
5=Not at all; 4=A little; 3=A moderate amount; 2=Very much; 1=An extreme amount
|
physicalpain, whoqol3bs, whoqol_3 |
Query
|
whoqol4 |
Integer |
|
Recommended |
How much do you need any medical treatment to function in your daily life? |
1::5
|
5=Not at all; 4=A little; 3=A moderate amount; 2=Very much; 1=An extreme amount
|
medicaltreatment, whoqol4bs, whoqol_4 |
Query
|
whoqol5 |
Integer |
|
Recommended |
How much do you enjoy life? |
1::5
|
1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=An extreme amount
|
enjoylife, whoqol5bs, whoqol_5 |
Query
|
whoqol6 |
Integer |
|
Recommended |
To what extent do you feel your life to be meaningful? |
1::5
|
1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=An extreme amount
|
meaningfullife, whoqol6bs, whoqol_6 |
Query
|
whoqol7 |
Integer |
|
Recommended |
How well are you able to concentrate? |
1::5
|
1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely
|
concentrate, whoqol_7 |
Query
|
whoqol8 |
Integer |
|
Recommended |
How safe do you feel in your daily life? |
1::5
|
1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely
|
safe, whoqol_8 |
Query
|
whoqol9 |
Integer |
|
Recommended |
How healthy is your physical environment? |
1::5
|
1=Not at all; 2=A little; 3=A moderate amount; 4=Very much; 5=Extremely
|
physicalenviron, whoqol_9 |
Query
|
whoqol10 |
Integer |
|
Recommended |
Do you have enough energy for everyday life? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
energy, whoqol_10 |
Query
|
whoqol11 |
Integer |
|
Recommended |
Are you able to accept your bodily appearance? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
bodilyapp, whoqol_11 |
Query
|
whoqol12 |
Integer |
|
Recommended |
Have you enough money to meet your needs? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
money, whoqol_12 |
Query
|
whoqol13 |
Integer |
|
Recommended |
How available to you is the information that you need in your day-to-day life? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
info, whoqol13bs, whoqol_13 |
Query
|
whoqol14 |
Integer |
|
Recommended |
To what extent do you have the opportunity for leisure activities? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
whoqol_14 |
Query
|
whoqol15 |
Integer |
|
Recommended |
How well are you able to get around? |
1::5
|
1=Very poor 2=Poor; 3=Neither poor nor good; 4=Good; 5=Very good
|
getaround, whoqol_15 |
Query
|
whoqol16 |
Integer |
|
Recommended |
How satisfied are you with your sleep? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
sleep, whoqol_16 |
Query
|
whoqol17 |
Integer |
|
Recommended |
How satisfied are you with your ability to perform your daily living activities? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
performactivities, whoqol_17 |
Query
|
whoqol18 |
Integer |
|
Recommended |
How satisfied are you with your capacity for work? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
capacityforwork, whoqol_18 |
Query
|
whoqol19 |
Integer |
|
Recommended |
How satisfied are you with yourself? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
satisfied, whoqol_19 |
Query
|
whoqol20 |
Integer |
|
Recommended |
How satisfied are you with your personal relationships? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
relationships, whoqol_20 |
Query
|
whoqol21 |
Integer |
|
Recommended |
How satisfied are you with your sex life? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
sexlife, whoqol_21 |
Query
|
whoqol22 |
Integer |
|
Recommended |
How satisfied are you with the support you get from your friends? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
supportfromfriends, whoqol_22 |
Query
|
whoqol23 |
Integer |
|
Recommended |
How satisfied are you with the conditions of your living place? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
livingconditions, whoqol_23 |
Query
|
whoqol24 |
Integer |
|
Recommended |
How satisfied are you with your access to health services? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
healthservices, whoqol_24 |
Query
|
whoqol25 |
Integer |
|
Recommended |
How satisfied are you with your transport? |
1::5
|
1=Very dissatisfied; 2=Dissatisfied; 3=Neither satisfied nor dissatisfied; 4=Satisfied; 5=Very satisfied
|
transport, whoqol_25 |
Query
|
whoqol26 |
Integer |
|
Recommended |
How often do you have negative feelings such as blue mood, despair, anxiety, depression? |
1::5
|
5=Never; 4=Seldom; 3=Quite often; 2=Very often; 1=Always
|
negfeelings, whoqol_26 |
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
|
Query
|
whoqol_d1 |
Integer |
|
Recommended |
Domain 1 Raw score |
|
(6-Q3) + (6-Q4) + Q10 + Q15 + Q16 + Q17 + Q18
|
|
Query
|
whoqol_d2 |
Integer |
|
Recommended |
Domain 2 Raw score |
|
Q5 + Q6 + Q7 + Q11 + Q19 + (6-Q26)
|
|
Query
|
whoqol_d3 |
Integer |
|
Recommended |
Domain 3 Raw score |
|
Q20 + Q21 + Q22
|
|
Query
|
whoqol_d4 |
Integer |
|
Recommended |
Domain 4 Raw score |
|
Q8 + Q9 + Q12 + Q13 + Q14 + Q23 + Q24 + Q25
|
|
Query
|
whoqol_ts |
Integer |
|
Recommended |
WHO-QOL Total score |
|
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
curreducompleted |
String |
50
|
Recommended |
Current grade education level completed |
|
|
whoqol_edu |
Query
|
cg_relation_status |
String |
50
|
Recommended |
Caregiver's relationship status |
|
|
whoqol_marital |
Query
|
demosam_042 |
Integer |
|
Recommended |
Are you currently sick? |
0;1;-999; 9
|
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
|
ill, whoqol_ill |
|
ae |
String |
4,000
|
Recommended |
Adverse event Description |
|
|
whoqol_problem |
Query
|
whoqol_helpwform |
Integer |
|
Recommended |
Did someone help you to fill out this form |
0;1
|
0 = No; 1 = Yes
|
helpwform |
|
whoqol_time |
String |
50
|
Recommended |
How long did it take to fill out this form? |
|
|
|
|
subject_description |
String |
4,000
|
Recommended |
Subject related information (e.g the affection, phenotype, disease information, etc.). |
|
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
week |
Float |
|
Recommended |
Week in level/study |
|
99=week 10-week 14
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
|
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
pi_staff |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
|
|
whoqol15bs |
Integer |
|
Recommended |
How well are you able to get around physically? |
1::5
|
1=Not at all; 2=A little; 3=Moderately; 4=Mostly; 5=Completely
|
|
|
whoqol26bs |
Integer |
|
Recommended |
How often do you have negative feelings such as blue mood, despair, anxiety or depression? |
1::5
|
1 = Never; 2 = Infrequently; 3 = Sometimes; 4 = Frequently; 5 = Always
|
|