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Youth Quality of Life

84 Shared Subjects

N/A
Clinical Assessments
Quality of Life
11/20/2015
yqol01
12/05/2018
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project record_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY interviewyear, pp_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_a
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported gender, sex_a, yqol_19
Query yqol_1 Integer Recommended I can handle most difficulties that come my way 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_2 Integer Recommended I feel I am important to others 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_3 Integer Recommended I have enough energy to do the things I want to do 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_4 Integer Recommended I feel comfortable with the amount of stress in my life 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_5 Integer Recommended My personal beliefs give me strength 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_6 Integer Recommended I feel understood by my parents or guardians 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_7 Integer Recommended My family encourages me to do my best 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_8 Integer Recommended I feel my parents or guardians allow me to participate in important decisions which affect me 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_9 Integer Recommended I try to be a role model for others 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_10 Integer Recommended I feel I can take part in the same activities as others my age 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_11 Integer Recommended I feel my life is full of interesting things to do 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_12 Integer Recommended I feel safe when I am at home 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_13 Integer Recommended I know how to get the information that I need 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_14 Integer Recommended I enjoy learning new things 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_15 Integer Recommended I feel safe when I am at school 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_16 Integer Recommended I feel life is worthwhile 0::10;-9 0=Not at all; 10=Very Much; -9 = incomplete
Query yqol_tot Integer Recommended YQOL total score 0::160; -9 -9 = incomplete
Query yqol_convt Integer Recommended YQOL converted t score 0::100; -9 -9 = incomplete
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data pi_staff
bkgrnd_education String 1,020 Recommended Subject's education (school and preschool) yqol_20
fsprg String 150 Recommended In your own words, to which race(s) or racial group(s) do you belong? yqol_21
race_other String 100 Recommended Race of Respondent Specify yqol_21_oth
su_today Date Recommended Interviewer: Please enter today's date. yqol_22
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data yqol_23
dawba_n3 String 255 Recommended Strengths - Other good points ado_strength1
general_comments_1 String 200 Recommended What are the behavioral and/or emotional strengths of this child? ado_strength2
mabc2_summary_17 String 100 Recommended Overalll profile of child's strengths and weaknesses ado_strength3
Query yqol_01 Integer Recommended I can handle most difficulties that come my way 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_02 Integer Recommended I feel I am important to others 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_03 Integer Recommended I have enough energy to do the things I want to do 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_04 Integer Recommended I feel comfortable with the amount of stress in my life 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_05 Integer Recommended My personal beliefs give me strength 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_06 Integer Recommended I feel understood by my parents or guardians 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_07 Integer Recommended My family encourages me to do my best 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_08 Integer Recommended I feel my parents or guardians allow me to participate in important decisions which affect me 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_09 Integer Recommended I try to be a role model for others 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_010 Integer Recommended I feel I can take part in the same activities as others my age 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_011 Integer Recommended I feel my life is full of interesting things to do 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_012 Integer Recommended I feel safe when I am at home 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_013 Integer Recommended I know how to get the information that I need 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_014 Integer Recommended I enjoy learning new things 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query yqol_015 Integer Recommended I feel safe when I am at school 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Completely
Query yqol_016 Integer Recommended I feel life is worthwhile 1::3 1 = Not At All/ Very Little ; 2 = Somewhat ; 3 = Very Much
Query visit String 60 Recommended Visit name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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