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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Query Instructions

NDA provides several ways to query and download data.

To inspect and access shared data in NDA, you have a variety of different approaches available. One or more approaches might be more or less effective depending on the nature of your interest. Using each query tool, you can view summary-level data without approved access, and create and download a filtered package of data with approval. Please see below for a description of how each different tool works. In general, data are queried by adding one or more filters to your cart, constructing a package of subjects who meet the specified filter parameters, then refining the results by measure and data source. Different filters added at once will apply on an AND basis, limiting your results only to those subjects who meet both sets of parameters. Eventually researchers will be able to apply query filters across all approaches as needed.

General – This tools allows you to specify sets of common fields such as assessment scores, types of experiments (e.g. imaging, omics, eeg), omic results, or basic information. Phenotypic information is provided only for NDAR subjects. Participants from RDoCdb and NDCT projects are listed with the name of the repository in the Phenotype field.

Data Dictionary – This tool allows you to query data by filtering on specific data structures, or specifying desired values for specific elements within a data structure (e.g. age between 24 and 36 months and gender equal to male). Multiple filters can be applied across multiple data structures.

Data from Papers – This page lists NDA Studies, which represent published results, papers, or other disclosures based on data contained and shared in NDA. The NIH expects the sharing of data directly associated with a publication or result and the creation of a Study to define it, and this tool can be used to browse or identify publications of interest and access the associated data.

Data from Labs – This page lists NDA Collections, which each represent one research project, lab, or grant contributing data. You can visit this page to browse or find a specific grant or lab using the filters to restrict the display by source repository, project phase, and funding source, and download all associated shared data.

Concept – This tool uses the autism phenotype ontology developed by Alexa McCray at Harvard University. Researchers can specify a concept value and the tool will return all subjects to whom that concept applies based on a displayed set of rules tied directly to specific data elements and value ranges. To define new concepts, contact us at NDAHelp@mail.nih.gov.

GUIDs – For those who have identified subjects of interest and searching for additional data that may be shared, this tool allows you to enter specific GUIDs, and returns all data shared for that individual across all of NDA.