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Frequently Asked Questions

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Query Instructions

NDA provides several ways to query and download data.

To inspect and access shared data in NDA, you have a variety of different approaches available. One or more approaches might be more or less effective depending on the nature of your interest. Using each query tool, you can view summary-level data without approved access, and create and download a filtered package of data with approval. Please see below for a description of how each different tool works. In general, data are queried by adding one or more filters to your cart, constructing a package of subjects who meet the specified filter parameters, then refining the results by measure and data source. Different filters added at once will apply on an AND basis, limiting your results only to those subjects who meet both sets of parameters. Eventually researchers will be able to apply query filters across all approaches as needed.

Data Dictionary – This tool allows you to query data by filtering on specific data structures, or specifying desired values for specific elements within a data structure (e.g. age between 24 and 36 months and sex equal to male). Multiple filters can be applied across multiple data structures.

Data from Papers – This page lists NDA Studies, which represent published results, papers, or other disclosures based on data contained and shared in NDA. The NIH expects the sharing of data directly associated with a publication or result and the creation of a Study to define it, and this tool can be used to browse or identify publications of interest and access the associated data.

Data from Labs – This page lists NDA Collections, which each represent one research project, lab, or grant contributing data. You can visit this page to browse or find a specific grant or lab using the filters to restrict the display by source repository, project phase, and funding source, and download all associated shared data.

Concept – This tool uses the autism phenotype ontology developed by Alexa McCray at Harvard University. Researchers can specify a concept value and the tool will return all subjects to whom that concept applies based on a displayed set of rules tied directly to specific data elements and value ranges. Since this tool is tied to an austim-related ontology and additional concepts are not yet defined by the research community, this tool applies to only NDAR data. To define new concepts, contact us at NDAHelp@mail.nih.gov.

GUIDs – For those who have identified subjects of interest and searching for additional data that may be shared, this tool allows you to enter specific GUIDs, and returns all data shared for that individual across all of NDA.